Beyond Type 1 Funding Model

 

Organization Note: This page is up to date through Q1’2021, and the organization will update this page quarterly. Updates from the close of Q1’2021 will be reflected shortly. Questions can be directed to hello@beyondtype1.org.

GENERAL OVERVIEW

What We Do: Beyond Type 1 is a nonprofit organization changing what it means to live with diabetes. Through platforms, programs, resources, and grants, Beyond Type 1 is uniting the global diabetes community and providing solutions to improve lives today. Founded in 2015 with a focus on education, advocacy and the path to a cure for Type 1 diabetes, Beyond Type 1 has grown to also include programs for those with Type 2 diabetes. A new model of philanthropy, Beyond Type 1 aims to change what it means to live with chronic illness.

Our Impact: Beyond Type 1 serves tens of thousands of people impacted by diabetes around the globe every day, and serves millions of people every month. The platforms represent the largest digital footprint of any diabetes organization in the world. Beyond Type 1 strives to create programs that offer solutions to improve the lives of those impacted by diabetes, while also building global reach and filling gaps in the diabetes space.

Community Donations: 100% of donations made by the community directly fund Beyond Type 1’s portfolio of platforms, programs and grants, making a direct and immediate impact in the lives of people living with diabetes.

Sponsorship Framework: In addition to the support of individual donors, Beyond Type 1 partners with corporations and organizations to support specific programs, educational content initiatives, and platforms through advertising. Corporate support is disclosed on materials related to each partnership, and is also available in aggregate on this page. Beyond Type 1 engages in corporate partnerships on a case-by-case basis, with input from the Board of Directors, Senior Staff, and various stakeholders internally and externally. The goal of partnerships is to further the organization’s mission and drive expanded impact.

Pharmaceutical Relationships: Beyond Type 1 partners with pharmaceutical companies, including insulin manufacturers, when the organization finds that doing so furthers mission and impact. Beyond Type 1 believes that high quality, modern insulin must be available to people with diabetes regardless of employment or insurance status, across all demographics, without barriers and at an affordable and predictable price point. The organization’s position is that these partnerships do not eliminate the ability to put pressure on these same companies related to insulin affordability and access, and such partnerships can create unique opportunities to drive change, such as the creation of GetInsulin.org. Beyond Type 1 has published extensively on insulin affordability, and will continue to expand its role in insulin advocacy.

Volunteers + Pro Bono Services: The Beyond Type 1 staff is small, and relies heavily on volunteers . These volunteers include the Board of Directors, the Leadership Council, and thousands in the community who offer their support. Moreover, Beyond Type 1 is grateful to have robust pro bono services offered by Lowenstein Sandler LLP (Legal), by 9thWonder (Media Consulting), and by Diabetes Daily + Google Grants (Ads).

FUNDING SOURCES + ACTIVE PARTNERSHIP INFORMATION

In addition to the generosity of tens of thousands of individual donors each year, Beyond Type 1 receives cash and in-kind contributions to sponsor programs, create educational content, and advertise on its platforms. Below is a list of all entities from whom Beyond Type 1 has received over $5,000 in cash funding over the previous 4 quarters combined, excluding individuals, individual/family donor advised funds, individual matching funds, and yet-to-be announced projects. Below the list you can find information explaining the projects that these partners’ funding supports.

$50,000+ combined over the last 4 quarters:

Abbott Diabetes Care
Allergan
American Diabetes Association (ADA)
Association of Diabetes Care and Education Specialists (ADCES)
Dexcom
Insulet
Helmsley Charitable Trust*
JDRF
Lilly Diabetes

Novo Nordisk
Mannkind
Medtronic
One Drop
Provention Bio
Roche
Sanofi
Tandem
Viatris (formerly Mylan)
Xeris Pharmaceuticals

$5,000+ combined over the last 4 quarters:

Casely
DreaMed Diabetes LTD
Koia / Raw Natures
TruEats
University of North Carolina at Chapel Hill

University of Utah
USA Natural Patches
Zealand Pharma

*The Helmsley Charitable Trust issued a grant for the Beyond Type 1 DKA Campaign in 2018, with the grant running through 2020. Beyond Type 1 is grateful for their continued support.

Financial support from the above partners is tied to programs, educational content, or platform-based advertising. Below is more information related to all sponsor/partner integrations over $5,000 from the last 4 quarters.

PROGRAMS

Diabetes Scholars
In addition to scholarships provided by individual and family donors, 2021 Scholarships for students with Type 1 diabetes include those made possible by Dexcom, JDRF, Lilly Diabetes, Medtronic, and a number of individual donors. 100% of scholarship funds donated are awarded to recipients, with Beyond Type 1 absorbing all operational costs associated with the program. Learn more here.

DKA Campaign (Warning Signs)
The DKA Campaign, which raises awareness for the warning signs of Type 1 diabetes with a goal of preventing death due to misdiagnosis, is supported by The Helmsley Charitable Trust. More information here.

GetInsulin.org
GetInsulin.org, an important tool connecting people with diabetes in the United States to the insulin access and affordability options that match their unique circumstances, was made possible with support from Lilly, Viatris (formerly Mylan), Novo Nordisk, and Sanofi. More information here.

SafeSittings
SafeSittings Diabetes Babysitting Service, to aid members of the community in finding babysitters who understand management of diabetes, is made possible with support from Insulet, makers of Omnipod. Learn more here.

Slipstreams (with Connected In Motion)
Slipstream events, created in partnership with Connected In Motion, are supported by Dexcom, Medtronic, Omnipod, Tandem Diabetes Care and One Drop. Their support makes programming weekend-long events for adults with Type 1 diabetes possible. 2020 events have largely transitioned to virtual programming in light of COVID-19. More information here.

Snail Mail Club
The Snail Mail Club, connecting members of the Type 1 diabetes community of all ages with pen pals, is made possible with support from Presenting Sponsor Abbott Diabetes Care. More information here.

TuDiabetes.org 
TuDiabetes.org, providing community support and conversation in English and Spanish for those impacted by T1D and T2D, is made possible with support from One Drop. Additional research on these platforms is made possible with support from the University of Utah.

EDUCATIONAL CONTENT

Beyond Type 1 partners to fund the creation of educational resources. Beyond Type 1 retains full editorial control of all content published on organization platforms, and news coverage is managed independently from content partnerships. The below list provides more details related to content initiatives from the last 12 months from the above funding sources; content from current and past partnerships also include disclosures in line on content pieces.

Beyond Type 2
Beyond Type 2 is made possible by the support of a coalition of Partners dedicated to making life better for those impacted by Type 2 diabetes: Abbott (FreeStyle Libre 14 Day System), The Association of Diabetes Care and Education Specialists (ADCES), Lilly Diabetes (Baqsimi ), Insulet Corporation (Omnipod), Roche Diabetes Care (Accu-Chek) and Lilly Diabetes (Trulicity). Learn more here.

Artificial Intelligence (AI) and Diabetes Care
Content about the future of artificial intelligence as it relates to diabetes care, and information about the creation of algorithms for future Hybrid Closed Loop systems was made possible with support from DreaMed Diabetes.

Armed for Diabetes Awareness Campaign
A website aimed to educate and raise awareness of Continuous Glucose Monitoring (CGM) technology among veterans with diabetes who access care via the VA was made in partnership with Abbott.

CGM Awareness Content
Beyond Type 1 has published a large library of content on technology and diabetes, Select pieces of educational content about the benefits of Continuous Glucose Monitoring (CGM) for people with diabetes was made possible with support from Abbott and Dexcom.

Community Table
Once-a-month conversations around under-discussed issues facing the diabetes community, focusing specifically on commonalities, questions and difficulties that affect all of those living with diabetes are presented by the JDRF-Beyond Type 1 Alliance, and made possible with support from sponsors Abbott Diabetes Care, Dexcom, Lilly, Mannkind, Medtronic, Omnipod, Roche Diabetes Care, and Tandem.

Complications Resources
Resources on diabetes complications, covering warning signs, symptoms, and treatment options were made available with support from  Allergan

Connected Diabetes Management
Development of new content, and updates to existing content about management of diabetes via digital apps + virtual diabetes coaching was made possible with support from One Drop.

Device Access Awareness
A set of resources sharing information about how to access the latest diabetes technology were made possible with support from Insulet.

Disparities in Diabetes Care: Technology 
Educational resources on the technology gap among BIPOC in the diabetes community, examining causes, research, and proposed solutions was made possible with support from Medtronic.

DKA in Management Awareness
Updated resources on how to recognize and treat DKA while managing Type 1 diabetes were made possible with a grant from Lexicon Pharmaceuticals.

European Language Expansion
The creation of Beyond Type 1 websites in Dutch, French, German, Italian and Swedish, was made possible with support from Dexcom and Insulet.

Hybrid Closed Loop Pump Awareness
Resources on the latest advancements and approvals of Automated Insulin Delivery (AID) systems, and the benefits of Hybrid Closed Loop therapy, were made possible with support from Tandem Diabetes Care.

Hypoglycemia Awareness
A content series on the the range of hypoglycemia, treatment response times and the future of dual-hormone AP systems is made possible with support from Zealand Pharma

Imagine Spotlights
Beyond Type 1 and the ADA partnered to create a speaker series featuring notable voices in the diabetes community as part of the ADA’s Imagine Camps program.

Inhaled Insulin Education Initiative
Educational content about inhaled insulin usage, discussions with HCPs on efficacy, and story-telling around inhaled insulin is made possible with support from Mannkind.

Knowledge Drop Expert Interview Series
Recorded conversations with diabetes experts covering key areas impacting everyone with Type 1 diabetes were made possible with support from Dexcom.

Next-Gen Glucagon Content 
A set of resources about liquid-stable glucagon, severe hypoglycemia, and next-gen glucagon delivery devices is made possible with support from Xeris Pharmaceuticals.

Research Trial Awareness
A series of educational content looking at the history of research trials and story-telling around trial participation is made possible with support from Provention Bio.

September Summits
Live, in-depth conversations with community members and healthcare providers about topics facing the diabetes community, produced by the JDRF-Beyond Type 1 Alliance and made possible with support from One Drop, Roche Diabetes Care and Xeris Pharmaceuticals.

Severe Hypoglycemia Initiative
The Severe Hypoglycemia Initiative raises awareness about the seriousness and treatment options for very low blood sugar for people with both Type 1 and Type 2 diabetes. The Severe Hypoglycemia Initiative was made possible with support from Lilly Diabetes.

Sleep and Diabetes Resources
Resources on sleep and diabetes, which debuted during National Sleep Week in March 2020 were made possible with support from Medtronic.

SmartPen Content
Creation of resources regarding SmartPen technology was made possible with support from Companion Medical.

ADVERTISING PARTNERSHIPS

Beyond Type 1 engages in advertising relationships with partners to support platforms; these ad units appear in the footer of websites, alongside email campaigns, or in disclosed advertising content. Beyond Type 1 does not engage with 3rd party advertising networks, and does not provide individual user information to advertisers without explicit user consent.

The below list includes current advertisers:

Abbott Diabetes Care
ADCES
Companion Medical
Dexcom
DreaMed Diabetes
Koia
Insulet

One Drop
Provention Bio
Real Good Foods
Roche
Tandem Diabetes Care
Steady Health
Zenobar

ADDITIONAL PARTNERSHIPS

Below includes partnerships listed in the Funding Source Summary that are not referenced in the above categories:

  • ADA: The ADA x BT1 Collab
  • Casely: Supported #TheDropSpotted Campaign for National Diabetes Awareness Month (NDAM) efforts
  • JDRF: The JDRF – Beyond Type 1 Alliance
  • Policy Working Group: Beyond Type 1 convenes an industry working group to discuss wide-ranging policy issues; the group includes Abbott, Dexcom, Insulet, Tandem, Lilly, Sanofi and Viatris
  • University of North Carolina Chapel Hill: The Jerry the Bear Clinical Program

FOUNDING FRIENDS

We are forever grateful to our Founding Friends whose generous gifts supported operations from 2015-2017, allowing Beyond Type 1 to build an organization supporting millions every month.

Loren + Mike Gordon
Amy + John Griffin
Cathie + Pitch Johnson
Gisel + Omid Kordestani
Kate + Gregg Lemkau

Leslie + William McMorrow
Jennifer + John Nordstrom
Otis Booth Foundation
Regina + John Scully

ADDITIONAL CURRENT PARTNERS

In addition to the active paid partnerships listed in the Funding Sources section of this page, Beyond Type 1 collaborates with many entities where the organization does not receive funding as part of the collaboration. Below lists current partners that are not sponsors of Beyond Type 1. We often work with our corporate sponsors listed above in both paid and unpaid capacities as well. If you do active work with Beyond Type 1 and are not listed below, please email hello@beyondtype1.org.

Aetna
Alliance to Modernize Prescribing Information (AMPI)
American Association of Clinical Endocrinologists (AACE)
Anedia Diabetes
AnnaPS
APDP – Portugal
Arogya World
Ascensia Diabetes Care
Asociación Chilena de Enfermeros Educadores en Diabetes
Asociacion Diabetes Madrid
Asociación DiaVida
Asociación Mexicana de Diabetes
Asociación para la Diabetes de Tenerife (ADT)
Asociación Valenciana de Diabetes
Australian Diabetes Educators Association
Australian Diabetes Society
Australian Paediatric Society
AYUDA
BD
BeMixed
Biomm
Blue Circle Diabetes Foundation
Brazilian Diabetes Society
Bulgarian Diabetes Association
Bulgarian Society of Endocrinology
California Institute for Regenerative Medicine (CIRM)
Canadian Pediatric Endocrine Group
Canadian Pediatric Society
Canal Diabetes
Carb DM
Cecelia Health
Certification Board for Diabetes Care and Education (CBDCE, formerly NCBDE)
CHAI
Children With Diabetes
Close Concerns
College Diabetes Network (CDN)
Connected In Motion
COVID-19 Vaccine Equity Project
CUI.D.AR ARGENTINA
Cyprus Diabetic Association
DANII Foundation
Desang
Diabetes Action Canada
Diabetes Australia
Diabetes Canada
Diabetes Connections
Diabetes Daily
Diabetes Disaster Relief Coalition (DDRC)
Diabetes Education & Camping Association (DECA)
Diabetes Experience Day
Diabetes Fighters Trust
Diabetes Hope Foundation
Diabetes NZ
Diabetes Online Community
Diabetes Patient Advocacy Coalition (DPAC)
Diabetes Patient Association – Canary Islands
Diabetes Policy Collaborative (DPC)
Diabetes What to Know
Diabetes Quebec
Diabetes Research Connection
Diabetes Research Institute Foundation (DRIF)
Diabetes Sports Project (DSP)
Diabetes Youth Families
DiabetesDE (Germany)
DiabetesMine / Healthline
DiabetesSisters
DiabetesStrong
DiabetesWise
Diabnext
DiaTribe Foundation
DIYA (India)
Enable BioSciences
Endocrine Society (ENDO)
Federación de Asociaciones de Diabetes de Canarias (FAdiCAN)
Feeding America
FHADIMAC
Fondazione Italiana Diabete
FRED – Fondation Ressources Pour Les Engantes Diabétiques
Frio UK

Fundación Diabetes Juvenil de Chile
Fuvida
Gales Creek Camp
Global Heart Health
Glooko
Guerreros Azules
Harvard Medical School
Hellenic Diabetes Federation
Hospital Sant Joan de Déu
I Challenge Diabetes
iDOCr
Insulin For Life
International Alliance for Diabetes Action (IADA)
International Diabetes Federation (IDF)
International Diabetes Federation – Europe
International Society for Pediatric and Adolescent Diabetes (ISPAD)
Jaeb Center for Health Research
JDRF Australia
JDRF Canada
JDRF Israel
JDRF Netherlands
JDRF United Kingdom
Life for a Child
LifeScan Diabetes Institute
Livongo
Maggiore Hospital
Malawi Diabetes Foundation
Mammoth Creameries
Mannkind
Marjorie’s Fund
Mexican Diabetes Federation
Mil Familias
Milken Institute
Myabetic
National Association for the Advancement of Colored People (NAACP)
National Association of School Nurses (NASN)
NCD Alliance
National Diabetes Volunteer Leadership Council (NDVLC)
National Hispanic Medical Association (NHMA)
PAANDA Diabetes
Partnership to Improve Patient Care (PIPC)
Philymack
Project ECHO
ProventionBio
Purchase District Health Department
Riding On Insulin (ROI)
Romanian Diabetes Federation
Samatvan Centre
Sansum Diabetes Research Institute
Second Hope for Diabetes
Senseonics
Sirma Medical Systems
Smarter Health Care Coalition / Healthsperien
Social Diabetes
Sociedad Española de Diabetes
Sonia Nabeta Foundation
Sproutel
Stanford Diabetes Research Center
T1D Exchange
T1D Learning Centre
TCOYD
Team Novo Nordisk
The Human Trial
Tidepool
Type1Eu
UCSF
UNC Chapel Hill
University of Florida Diabetes Institute
WCPG
WeAre8
We Are Diabetes

ADDITIONAL INFORMATION

The Beyond Type 1 Board of Directors abide by a Conflict of Interest policy that requires disclosure and potential recusal from decision-making should the organization partner with an entity that a Director has a financial relationship with. This policy is available HERE.

Public versions of past tax filings (Form 990): 2019 | 2018 | 2017

If you have questions about the Beyond Type 1 funding model, please email: hello@beyondtype1.org.