Get Involved with Access Advocacy
Editor’s Note: People who take insulin require consistently affordable and predictable sources of insulin at all times. If you or a loved one are struggling to afford or access insulin, click here.
Millions of people with diabetes around the world do not have access to life-saving medicines and supplies. In the United States and abroad, access issues are urgent, critically important, and often enraging. There ARE things you can do to take action + make change in the fight for global access. Keep reading for tools to get started with advocacy.
Get Involved on the Federal Level
The American Diabetes Association’s (ADA) advocacy platform scores new bills coming out of Washington to make it easy to understand how they will impact Americans living with diabetes. From there, you can show your support by contacting your local representatives.
Get Involved with State-by-State Efforts
- The Diabetes Patient Advocacy Coalition (DPAC) maintains a current list of the most promising state actions impacting people with diabetes, including built-in tools that make it easy to contact your state lawmakers. Get involved locally to make a meaningful difference.
Protect Preexisting Condition Coverage
- Sign JDRF’s #Coverage2Control Petition to tell Congress to defend protections for people with pre-existing conditions.
- Contact your federal representatives directly. Find out who represents you here, and give them a call to let them know how important ongoing federal protection guaranteeing insurance coverage for preexisting conditions is for people with Type 1 diabetes.
Join the USA Insulin Access Movement
Between 2002 and 2013 the average list price of insulin in the United States tripled. The increase in high-deductible health insurance plans has left many Americans paying for expensive insulin out of pocket at the pharmacy. Learn more about how insulin pricing works here. Raise your voice + join the movement fighting for insulin access in the United States.
- USA #Insulin4All Action on US Drug Pricing: Read up on the efforts spearheaded by T1International + the online advocacy organized around the hashtag #insulin4all. Chime in on Twitter + stay in the know for local events and opportunities, including emerging state chapters.
- Legal measures: Follow along with the Type 1 Diabetes Defense Foundation, an independent nonprofit legal organization (with no funding from pharma) filing class action lawsuits to challenge the overpricing of insulin and other supplies.
- Sign the American Diabetes Association Petition – Stand up for access by adding your name alongside over 440,000 other advocates calling for access to affordable insulin in the USA.
General Advocacy Tools
- The Diabetes Access Advocacy Toolkit: Created by T1International with funding from Beyond Type 1, this Toolkit is designed to help you make meaningful change. Sections include: Understand the Issue, Planning and Taking Action, Evaluating + Celebrating, and examples of advocacy case studies that have had real world success. Download the PDF here.
Advocate for People with Diabetes in your Workplace
- If you feel your employer-provided insurance coverage is inadequate for people with diabetes, take it to HR and ask your employer to make insulin exempt from your health insurance deductible. The Affordable Insulin Project has created a free guide to taking action at your workplace.
Learn more about insulin access challenges in the United States – explore Beyond Type 1’s Focus On Access series.
People who take insulin require consistently affordable and predictable sources of insulin at all times. If you or a loved one are struggling to afford or access insulin, click here.