Type 1 Diabetes Statistics
Why look at statistics?
Rates of incidence of Type 1 diabetes are rising around the world. Statistics specific to certain countries allow us to study areas that may be experiencing a sharp uptick in Type 1 diagnoses, or even a gradual climb that indicates something is changing in that place. Looking at Type 1 through the lens of statistics also allows those of us living with diabetes every day to separate ourselves from something personal and emotional, focusing instead on facts and a bigger picture.
- Approximately 1.6 million Americans have Type 1 diabetes.
- By 2050, 5 million people are expected to be diagnosed with Type 1 diabetes.
- An estimated 64,000 people are diagnosed with Type 1 diabetes each year.
- 200,000 people under the age of 20 years old have Type 1 diabetes.
- Between 2011 and 2012, 17,900 children and adolescents under the age of 20 were diagnosed with Type 1 diabetes.
- There was a 21% increase in people diagnosed with Type 1 diabetes between 2001 and 2009 under the age of 20.
- By 2050, 600,000 people under the age of 20 are expected to have Type 1 diabetes.
- Among people under the age of 20, non-Hispanic whites had the highest rates of new diagnosis of Type 1 diabetes.
- There are $16 billion in Type 1 diabetes-associated healthcare expenditures and lost income each year.
- Less than a third of people with Type 1 diabetes consistently achieve target blood-glucose control levels.
- Preliminary data from T1International’s 2018 access and supply survey that says 1 of every 4 US respondents have rationed insulin due to cost.
- An estimated of 1 in every 430-530 people under the age of 19 have Type 1 diabetes.
- Out of 3.7 million people living with diabetes, DiabetesUK estimates that 10% have Type 1.
- That translates to about 400,000 people.
- 29,000 of those living with Type 1 are children.
- The U.K. was ranked fifth among countries regarding rate of incidence of Type 1 diabetes among children ages 0-14 with a rate of 24.5 out of 100,000.
- The average diabetes cost share per month is 1.4%, according to responses received for T1International’s 2016 survey.
- Over 300,000 Canadians live with Type 1.
- Of those living with Type 1 diabetes, 33,000 are children ages 5-18.
- The rate of incidence of Type 1 among children 1-9 years old increased over a ten-year period from 1998-2009 from 0.1% to 0.2%.
- Canada was listed 10th among countries according to rates of incidence of Type 1 diabetes among children.
- The rate of incidence of Type 1 among children ages 0-14 is nearly 22 out of 100,000.
- There is a prevalence rate of 0.3% of Type 1 among children and adolescents ages 0-19.
- DKA is found 15 to 67% of the time when Type 1 is diagnosed.
- In children under five years old, boys were found to be more likely to be affected by Type 1 than girls, according to the Government of Canada.
- Check out the Beyond Type 1 Canada page for more information about support and resources!
- Worldwide, the rate of incidence of Type 1 is increasing, and this trend also affects New Zealand. Over the last 25 years, the rate of incidence went up by over 12%.
- The rate of incidence went up from 10.9 per 100,000 among children aged 0-14 years in 1990 to 22.5 per 100,000 in 2009, according to a 2012 study.
- The New Zealand Medical Journal published a 2015 study concluding that of all types of diabetes, Type 1 is most likely to affect the younger population, “irrespective of ethnicity and socioeconomic status.”
- Diabetes New Zealand offers multiple resources for regional support on the North and South Islands.
- Check out the Beyond Type 1 New Zealand page for more information!
- From 2000 to 2010, the rate of incidence of Type 1 diabetes increased from 3.4 to 6.2 per 100,000 among the population under 19 years old.
- Children ages 10-14 and adolescents ages 15-19 experienced the highest increase in rates of diagnosis for Type 1.
- The male population under five years old and the female population over five years old experienced higher rates of incidence during that same time period.
- The Mexican Institute of Social Security (IMSS) is an institution that tracks data around chronic conditions in Mexico while providing public benefits.
- In a study of 192 PWDs over age 18, over 80% of participants had an A1C of over 7%, with a mean A1c of 9.2%.
- Approximately 2 million people are living with diabetes in Argentina.
- The rate of incidence of Type 1 among children ages 0-14 is around 7 per 100,000, ranking Argentina 53rd among countries according to rates of incidence.
- According to the WHO, basic technologies like blood and oral glucose tests, A1c measurements, and urine tests are not generally available in the public health sector.
- However, PWDs receive free insulin, some oral drugs and some test strips through public health insurance.
- According to T1International, Glucagon kits cost approximately $57 USD on average for 2016 survey respondents.
- Argentina does not yet have a national register for Type 1 diabetes.
- Over 100,000 children in India are living with Type 1.
- India is listed among the top 10 countries for number of people under 20 years old with Type 1 diabetes, according to the IDF.
- According to 2016 data collected by T1International, a vial of Novolog has an out-of-pocket cost of $22 USD on average for survey respondents.
- It also revealed that the average diabetes cost share is nearly 80% of the monthly income for someone with Type 1 among respondents.
- Average costs for Glugagon kits were over $100 USD for survey respondents with Type 1 diabetes paying out of pocket.
- Along with 10 other countries, India comprises the WHO’s South-East Asia region, which has a prevalence of Type 1 diabetes of 1,11,500 in children.
- Nearly 50,000 children and adolescents under age 20 are living with Type 1 diabetes in China, placing it among the top 10 countries according to the eighth edition of the IDF Diabetes Atlas.
- Dr. Weng Jianping led a study that found that China is among the countries with the lowest rates of incidence of Type 1 diabetes in children and adults.
- Over 60% of new diagnoses over a three-year period were among people 20 years old or older.
- Dr. Weng’s study concluded that populations in Northern China experience a higher rate of incidence of Type 1 diabetes than regions in the south.
- The same study also found that in 2015, China had the largest estimated number of new annual cases of type 1 diabetes in children of any country in the Western Pacific, at a rate of over 4,000 out of 10,000.
- China does not yet have a national register for Type 1 diabetes.
- Approximately 35,000 children in Saudi Arabia live with Type 1 diabetes.
- Saudi Arabia is listed as the country with the third-highest rate of incidence of Type 1 diabetes among children ages 0-14.
- Saudi Arabia had the highest rate of children affected with Type 1 in the Middle East and North Africa (MENA), equivalent to a quarter of the total number of children with diabetes in the region, as noted in an article in the 2018 International Journal of Pediatrics.
- The article cited a study that found more than 90% of the children and adolescents living with diabetes in Saudi Arabia do not know they have diabetes.
- Another study found that more than one-fourth of the female population with Type 1 experiences a lower quality of life and irregular periods.
- Over 10% of Spain’s adult population of over 34 million have diabetes, according to the IDF.
- People with Type 1 make up 0.2-0.3% of those with diabetes in Spain.
- The rate of incidence of Type 1 ranges from 9.5-16 per 100,000 children ages 0-14.
- The rate of incidence increases among the male population older than 15 years old.
- Nationwide, the rate of incidence of Type 1 is between 11 and 12 per 100,000.
- Spain’s National Health System covers all diabetes-related expenses, offering universal health coverage to over 47 million people.
- The rate of incidence of Type 1 among children ages 0-14 is approximately 20 per 100,000.
- Between 1978 and 2011, the rate of incidence in children doubled.
- About 750,000 people live with diabetes, equivalent to about 5% of the Dutch population.
- About 20% of those have Type 1, which is about 150,000 people.
- Type 1 diagnoses are predicted to rise by 2.5% by 2020.
- In the Netherlands, children with Type 1 are at higher risk of developing thyroid disease – 24 times more so than those without diabetes.
- Over 7% of France’s adult population of 45 million have diabetes.
- In 2013, France was listed as #21 among countries according to rate of incidence of Type 1 diabetes among children 0-14 years old, with a rate of 12.2 out of 100,000.
- The rate of incidence of Type 1 increased to about 18 per 100,000 people as of 2015.
- The highest rates of incidence occurred in the regions of Corsica (21.7 per 100,000 people), Provence-Alpes-Côte d’Azur (21.1 per 100,000) and Hauts-de-France (19.7 per 100,000).
- France does not yet have a national register for Type 1 diabetes.
- Germany is ranked 12th in the world when it comes to rates of incidence of Type 1 diabetes, with a rate of 18 per 100,000 among children ages 0-14.
- Over 25,000 adolescents and children under age 20 have Type 1 diabetes, placing Germany among the top 10 countries for that population in the 8th edition of the IDF Diabetes Atlas.
- The total prevalence of diabetes for the German population in 2010 was nearly 10%. Type 1 made up 0.3%.
- Prevalence of Type 1 diabetes was higher among adult men than among women in 2010: 0.38% compared to .28%.
- Data from T1International’s 2016 access and supply survey noted that for respondents with Type 1, an average of 0.3% of their monthly income was allocated to diabetes cost share.
- Between 1999 and 2014, a larger increase in rate of incidence of Type 1 diabetes was found among children 10–14 years old than for other age groups.
- About 300,000 people live with Type 1 in Italy, which has a population of 60 million.
- That’s less than 10% of people living with diabetes.
- Italy’s rate of incidence of Type 1 diabetes in children is 12 out of 100,000.
- The Italian island of Sardinia is an anomaly to the rest of the country: the second-highest rate of incidence of Type 1 diabetes in the world is found there.
- Sardinia’s rate of incidence of Type 1 diabetes in children is 45 out of 100,000.
- The average out-of-pocket cost of insulin in Italy is $0 USD, according to respondents to T1International’s 2016 survey.