The Complications Playbook
Breaking Down the Complex
Take a Deep Breath
Diabetes complications can be scary to think about—and even scarier to talk about. They tend to come with shame and blame, but complications can happen to anyone, especially if you've been living with diabetes for a long time. The bottom line—shame has no place here. We're here to give you the information you need to get the help you deserve.
Talking About Complications
The idea of diabetes complications can be scary. But when we start talking about them, learning how to prevent them...
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Most people living with diabetes will remember conversations they’ve had with healthcare professionals about diabetes-related complications, and often, those memories...
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It’s hard to deny that one of the main reasons diabetes causes fear and denial is due to the possibility...
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We have been educated, maybe warned, or even “threatened” with diabetes complications since we’ve been diagnosed. Many of us have...
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The unfortunate truth: having diabetes can significantly increase your risk of developing other health conditions. While some potential diabetes complications...
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Almost 30 years ago research found that chronic hyperglycemia (high blood glucose), as well as the length of time a...
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Neuropathy + Nerve Health
When you live with any type of diabetes, complications can happen over time—even when blood glucose control is tight. This...
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Editor’s Note: This content was made possible with support from Nevro, an active partner of Beyond Type 1 at the...
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One of the major diabetes complications everyone hears about is neuropathy. When people think of neuropathy they think of losing...
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Living with diabetes isn’t easy, and the complications that can come with it can be overwhelming, scary and painful....
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Diabetes can put a person at risk for developing a wide range of conditions. Often this is due to a...
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Technology is changing how we treat diabetes complications, from AI-powered tools to neurostimulation devices. Here’s what’s making a difference.
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Retinopathy + Eye Health
Diabetic eye disease, also known as retinopathy, is one of the most well-known complications of diabetes. People with diabetes (PWD)...
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Taking good care of your eyes is especially important for people with type 1 diabetes. No matter what your blood...
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Your annual diabetes eye exam can take anywhere between one to two hours because there are actually four parts to...
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Retinopathy is one of the most common and most serious diabetes-related eye complications. It’s actually the leading cause of preventable...
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One of the most common yet rarely talked about eye conditions in people with diabetes is dry eye, it affects...
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While anyone can develop this eye condition, floaters are more common in people with diabetes who have developed diabetic retinopathy...
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Other Complications
The effects of hyperglycemia are widespread in the human body. It is not surprising that our musculoskeletal system can be...
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Gastroparesis, also known as delayed gastric emptying, is a type of autonomic neuropathy that affects the digestion of food. Gastroparesis...
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When thinking about diabetes we don’t often think of the health of our mouth, gums, and teeth known as our...
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Diabetes nephropathy, also known as diabetic kidney disease, affects 20-40 percent of people with diabetes. The leading cause of chronic...
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Having diabetes means that you are more likely to develop heart disease and have a greater chance of a heart...
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High blood glucose due to diabetes can cause damage to many parts of the body, including the heart. Chronically high...
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Have you ever had a low where you needed someone else to step in?
Low blood sugar is no joke, and knowing what to do matters. If a loved one is low and conscious, give juice, soda (not diet), or glucose tabs. If they’re unconscious or too weak, use glucagon and call emergency services. These simple steps can save a life.
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Did you know that 40% of adults diagnosed with T1D were initially diagnosed with T2D? And that number could be a whole lot smaller with a simple c-peptide test done at diagnosis. Spread the word and let`s lower that percentage together 🤝
Social determinants of health screening in type 1 diabetes management | SIREN. (2024, March). Ucsf.edu. https://sirenetwork.ucsf.edu/tools-resources/resources/social-determinants-health-screening-type-1-diabetes-management
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How it started vs. how it’s going
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Diabetes isn`t a barrier to gender-affirming care and hormone therapy. Here`s a few questions to ask if you`re looking to start a conversation with your healthcare team about transitioning while living with diabetes. Share this so someone who could use it finds it.
- How might hormone therapy change my insulin needs?
- What baseline diabetes information should we review before I start hormones?
- How often should I monitor my glucose when starting hormone therapy?
- Who will help adjust my insulin if my numbers change?
- What warning signs should I watch for after starting hormone therapy?
Reminder: Beyond Type 1 has a zero-tolerance policy for hate speech. Comments that are discriminatory, harassing, or harmful will be deleted.
#TransVisibilityDay #GenderAffirmingCare #t1dlookslikeme
Calling all innovators and entrepreneurs in the diabetes space 🗣️ We are looking to fund those who are shaping the future of diabetes care.
If you or your organization are interested, apply by April 28! Or share with someone who might be a good fit.
Every person with diabetes deserves affordable access to insulin. The INSULIN Act is one important step to make that happen. Introduced on Wednesday, the bipartisan bill aims to cap the cost of insulin at $35 for those on private insurance.
As members of the Diabetes Patient Advocacy Coalition (@diabetespac) and the Diabetes Leadership Council, we support the INSULIN Act and all efforts to make insulin affordable.
We’re looking forward to continuing our work with @diabetespac this year, including bringing ambassadors to Hill Day to advocate for policies that improve the lives of people with diabetes. If you’re interested in lending your voice, sign up to become a Beyond Ambassador in our bio. Updates and info coming soon.
And if you or someone you know is struggling to afford insulin right now, find the cost-saving options available to you at getinsulin.org
#Diabetes #InsulinAccess #Type1Diabetes
Have you heard of a c-peptide test?
There are 3 stages of type 1 diabetes and a c-peptide test can help prevent misdiagnosis, refine your treatment plan, and potentially slow down the progression of T1D.
If you`ve been screened for T1D and are in Early Stage 2 T1D → Ask for a C-peptide test in the next few months, could be eligible for beta cell preservation to slow down the progression of T1D.
If you’ve recently been diagnosed with T1D (Stage 3) → Ask for a C-peptide test within 2 weeks, could be eligible for beta cell preservation to slow down the progression of T1D.
If you’ve had T1D for a year or more → discuss with your healthcare provider, could help you understand where you stand.
For more information on stages and when to see your doctor, check out our bio!
How do you describe the feeling of a low blood sugar to others?
Tell me I`m not the only one who`s had a workout like this 😭
A reminder that our silent fight with Type 1 Diabetes doesn’t go unnoticed 🥊
The NYC Marathon cheer section without a trending audio 👏🎉
If you want to train with us and the Beyond Type Run team this year, the application is now open! Find it in the link in our bio
And shoutout to our founding presenting partner @dexcom for making this happen.
Diabetes doesn`t define your limits.
"I was diagnosed with Type 1 diabetes in 2001 at 6 years old. Since then I’ve learned that managing diabetes isn’t just something that happens in the background of life, it’s something you carry with you into every moment.
Into the firehouse.
Into the gym.
And into the ring.
Last Friday I stepped into Madison Square Garden for the FDNY Battle of the Badges, proudly representing firefighters, my city, and the entire Type 1 community.
Living with T1D means constantly balancing numbers, decisions, and discipline. But it also teaches resilience, preparation, and mental toughness.
If there’s one thing I hope people take away from this moment, it’s that diabetes doesn’t define your limits. You can still chase the biggest dreams, step into biggest arenas, and live to the fullest.
This one’s for everyone living with Type 1."
@chrispal5000
I will be testing every liquid I encounter until further notice 🙂↕️
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