The Special Diabetes Program: What It Is and How You Can Help
This resource was created in partnership with JDRF through the JDRF – Beyond Type 1 Alliance. It is being updated periodically as funding for the SDP is renewed; the last update carries funding through December 11, 2020.
Did you know that various U.S. health centers receive, if voted upon, $150 million per year for Type 1 diabetes research? And did you know that you can influence whether or not they receive this vital funding? Keep reading to learn more about the Special Diabetes Program and how you can keep it going.
What is the Special Diabetes Program?
The Special Statutory Funding Program for Type 1 Diabetes Research, or Special Diabetes Program (SDP) is a government funded program that provides roughly $150 million annually for Type 1 diabetes research. The funding is voted on by members of Congress and the money is allocated to various promising diabetes-focused research programs and clinical trials.
Why does it matter?
In 1997, a U.S. Congressional Diabetes Research Working Group reported that limitations and lack of progress in diabetes research and treatment were a result of lack of funding. The SDP was established and has since funded monumental research to dramatically shift the way we understand, treat, and search for preventions and cures for Type 1 diabetes.
In its first 3 years, $30 million was allocated toward T1D research each year; in the following three, $100 million per year. Starting in 2004, $150 million has been allocated each year (with minor funding variations in 2014, 2015, and 2017) because of the life-impacting research the funding has produced.
Discovery, innovation and development happens faster with more funding – it keeps the lights on in labs and allows promising researchers to focus on their important work for longer, more dedicated periods of time.
Better understanding why T1D happens, developing artificial pancreas technology, and driving advances in vision improvement for people with T1D are just a few of the things that have been accomplished through SDP funding.
How does it work?
Funding for the SDP is always attached to greater budgetary legislation, so while the SDP receives bipartisan support for the clear benefit it provides and innovation it produces, it can be impacted by larger national budgetary discussions.
For example, in 2015, the SDP was attached to the Medicare Access and CHIP Reauthorization Act, while in 2018 it was part of the Bipartisan Budget Act. Depending on the legislation it is attached to, sometimes the SDP can be renewed for multiple years at a time while sometimes, like most recently, it is approved for short periods of time in an attempt to keep funding going while larger budgetary negotiations continue.
Once funding is approved, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) oversees the program as part of the National Institutes of Health (NIH), in collaboration with the Centers for Disease Control and Prevention (CDC) and other health institutes.
The NIDDK invites researchers to apply for funding opportunities based on current innovation in the field. At present, funding opportunities are open for novel approaches for open or closed loop hormone replacement therapies, further insight into what happens to beta cells immediately before and following a diagnosis of Type 1 diabetes (which could help researchers discover how to prevent or delay T1D), novel approaches to cell replacement therapies (like beta cell replacements) and more.
In addition to the funding opportunities, the NIDDK has created a collection of research tools to allow all future research to build upon the past; instead of each researcher needing to start new or collect entirely new samples, a collection of research tools, technologies, biological samples, data, etc. are available for researchers to learn from and analyze.
By pooling resources, research can move faster, with larger sample sizes and more accurate data to pull from. This benefits not only researchers funded by the Special Diabetes Program, but the entire diabetes field.
What’s the SDP’s current status?
While in the past, the SDP has been renewed for multiple years at a time, it is currently in a loop of being extended through short-term continuing resolutions (CR) as larger budgetary discussions happen in Congress.
In late September 2019, a CR provided $21.5 million in SDP research funding through late November. In late November 2019, another CR contained nearly $12 million in funding for one month. In late December 2019, another extension for nearly $63 million was signed, intended to carry SDP funding through May 22, 2020. In March 2020, as part of the Congressional relief package for COVID-19, an additional $75 million in funding was provided to carry the SDP through November 30, 2020. On October 1, an additional $4.52 million in funding was approved to carry the SDP through December 11, 2020.
Congressional Diabetes Caucus Co-Chairs, Representative Diana DeGette (D-CO) and Representative Tom Reed (R-NY), and Senate Diabetes Caucus Co-Chairs, Senator Susan Collins (R-ME) and Senator Jeanne Shaheen (D-NH) champion efforts to renew multiple year SDP funding.
What’s at stake?
Together, multiple non-profit organizations in the diabetes space continue to reach out to members of Congress urging them to pass multi-year funding for the Special Diabetes Program.
Multi-year funding provides consistency and enables long term research to take place.
If the SDP is not renewed for funding in November 2020, researchers currently funded through the SDP will need to find alternate sources of funding and risk being paused or shut down until funding can be procured. This stops research and clinical trials for things like beta cell replacement therapy, artificial pancreas technologies, and prevention methods.
What can you do about it?
If you live in the U.S., you are represented by local, state, and federal politicians. The SDP is voted upon at a federal level.
At a federal level, you are represented by one Congressional Representative and two U.S. Senators. You can reach out to the Congressional Representative that represents your district and to both of your State Senators about issues that matter to you.
Sharing your Type 1 diabetes story with your local Congressional Representative and your Senators makes a big difference in how they vote on the SDP. While the Special Diabetes Program receives bipartisan support, Congress is faced with many other funding decisions.
Your voice makes a big difference in ensuring $150 million in vital funding is provided for Type 1 diabetes research every year. With it, the diabetes research community will continue to work toward preventions, cures and, in the meantime, better ways to more safely live with Type 1 diabetes.
If you would like to contribute to T1D research and fund cures, make a gift to JDRF here.