Participate in Type 1 Diabetes Research From Home


 2022-10-07

Editor’s note: Ginger Vieira was a freelance employee of T1D Exchange at the time of publication.


Research doesn’t always involve taking new medications. Instead, research on type 1 diabetes can actually include answering questions about how you’re cared for in the doctor’s office, how different types of technology impact your health or how certain factors impact your blood sugars. 

T1D Exchange is a non-profit organization that manages different types of research to help improve the lives of people with type 1 diabetes. Their Quality Improvement Collaborative (T1DX-QI) works with 50+ participating endocrinology clinics across the country. 

The T1DX-QI identifies potential problems or gaps in care, develops possible solutions, then implements successful solutions known as “change packages” into clinical practice.

Getting involved in research + community

There are two ways you can get involved with T1D Exchange’s work to improve care for people with type 1 diabetes:

  • T1D Exchange Registry: The Registry allows you to sign up as a potential participant in a huge variety of ongoing research on improving the lives of people with T1D. You’ll have a personalized Registry dashboard to monitor new and ongoing research opportunities that may apply to you.
  • T1D Exchange Online Community: The Online Community involves research conducted online only, including answering “Questions of the Day” about life with T1D and research surveys. You also have access to articles about T1D research, interviews with experts and empowering stories about people with T1D.

T1D Exchange research aims to identify problems and shortcomings in patient care affecting any specific population.

Recruiting right now: share your CGM data

T1D Exchange is collecting continuous glucose monitor (CGM) data to improve patient care by recruiting Registry participants to share their CGM data. All personal information about your identity is completely removed from your data—fully protecting your privacy.

T1D Exchange combines your CGM data with self-reported details about your life (that you can share via questionnaires and surveys) to better understand what factors influence a person with diabetes’s well-being and overall health.

T1D Exchange’s past research includes:

T1D Exchange’s research has led to the creation of important programs like the Health Equity Advancement Lab (HEAL), which was formed based on extensive research from the organization on the impact COVID-19 had on different racial and ethnic groups. HEAL strives to close the enormous gaps in care provided to people of color. The development of programs like HEAL proves the need for survey participants to help make things better for all groups affected by diabetes.

The bottom line

You can make a difference in the care people with diabetes receive at the doctor’s office, the development of technology and more. By joining the T1D Exchange Registry, you can impact positive changes in your life and the lives of others affected by type 1 diabetes across the country.

If you’re curious about participating but still have questions, email Registry@T1DExchange.org to learn more.

WRITTEN BY Ginger Vieira, POSTED 10/07/22, UPDATED 10/08/22

Ginger Vieira is an author and writer living with type 1 diabetes, Celiac disease, fibromyalgia, and hypothyroidism. She’s authored a variety of books, including “When I Go Low” (for kids), “Pregnancy with Type 1 Diabetes,” and “Dealing with Diabetes Burnout.” Before joining Beyond Type 1, Ginger spent the last 15 years writing for Diabetes Mine, Healthline, T1D Exchange, Diabetes Strong, and more! In her free time, she is jumping rope, scootering with her daughters, or walking with her handsome fella and their dog.