Participate in Type 1 Diabetes Research From Home
Research doesn’t always involve taking new medications. Instead, research on type 1 diabetes can actually include answering questions about how you’re cared for in the doctor’s office, how different types of technology impact your health or how certain factors impact your blood sugars.
T1D Exchange is a non-profit organization that manages different types of research to help improve the lives of people with type 1 diabetes. Their Quality Improvement Collaborative (T1DX-QI) works with 50+ participating endocrinology clinics across the country.
The T1DX-QI identifies potential problems or gaps in care, develops possible solutions, then implements successful solutions known as “change packages” into clinical practice.
Getting involved in research + community
There are two ways you can get involved with T1D Exchange’s work to improve care for people with type 1 diabetes:
- T1D Exchange Registry: The Registry allows you to sign up as a potential participant in a huge variety of ongoing research on improving the lives of people with T1D. You’ll have a personalized Registry dashboard to monitor new and ongoing research opportunities that may apply to you.
- T1D Exchange Online Community: The Online Community involves research conducted online only, including answering “Questions of the Day” about life with T1D and research surveys. You also have access to articles about T1D research, interviews with experts and empowering stories about people with T1D.
T1D Exchange research aims to identify problems and shortcomings in patient care affecting any specific population.
Recruiting right now: share your CGM data
T1D Exchange is collecting continuous glucose monitor (CGM) data to improve patient care by recruiting Registry participants to share their CGM data. All personal information about your identity is completely removed from your data—fully protecting your privacy.
T1D Exchange combines your CGM data with self-reported details about your life (that you can share via questionnaires and surveys) to better understand what factors influence a person with diabetes’s well-being and overall health.
T1D Exchange’s past research includes:
- Identifying and addressing fear of hypoglycemia
- How a person’s type of health insurance affects long-term health
- How a person’s race/ethnicity affects their T1D care
- Improving depression screening in young people with T1D
- Evaluating the pros and cons of telemedicine in T1D care
- …and more!
T1D Exchange’s research has led to the creation of important programs like the Health Equity Advancement Lab (HEAL), which was formed based on extensive research from the organization on the impact COVID-19 had on different racial and ethnic groups. HEAL strives to close the enormous gaps in care provided to people of color. The development of programs like HEAL proves the need for survey participants to help make things better for all groups affected by diabetes.
The bottom line
You can make a difference in the care people with diabetes receive at the doctor’s office, the development of technology and more. By joining the T1D Exchange Registry, you can impact positive changes in your life and the lives of others affected by type 1 diabetes across the country.
If you’re curious about participating but still have questions, email Registry@T1DExchange.org to learn more.
