About Beyond Type 1
2/17/17
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EDUCATE  ADVOCATE  CURE

Beyond Type 1 was founded in 2015 by Juliet de Baubigny, Nick Jonas, Sarah Lucas and Sam Talbot. Beyond Type 1 is a new brand of philanthropy leveraging the power of social media and technology, changing what it means to live with Type 1 diabetes. By educating the global community about this chronic, autoimmune disease, as well as providing resources and support for those living with Type 1, Beyond Type 1 bridges the gap from diagnosis to cure, empowering people to both live well today and to fund a better tomorrow. 100% of every dollar raised directly supports the most promising global efforts and programs working to educate, advocate and cure Type 1 diabetes.

Beyond Type 1 is a registered 501(c)3.

Founders

NICK JONAS

Nick was diagnosed with Type 1 diabetes at the age of 13. The multi-platinum selling recording artist, talented actor and philanthropist continues to support charitable causes that are close to his heart while encouraging youth to follow their dreams in spite of their struggles. He has served as an advocate for a variety of important issues, including health and education for our youth, human rights and most notably diabetes.

JULIET DE BAUBIGNY

Juliet’s son Nicolas was diagnosed with Type 1 in 2012 at the age of 5. Juliet joined Kleiner Perkins Caufield & Byers in 2001, and as a partner works with the firm’s portfolio companies on areas of human capital. She has served on numerous national and international non-profit boards and campaigns, most notably Product (RED).

SARAH LUCAS

Sarah’s daughter Mary was diagnosed with Type 1 in 1998 at the age of 7. An event designer, writer and lifestyle expert with a passion for philanthropy, she has raised over $10 million for Type 1 charities over the past 15 years. She has served on the board of several Bay Area and national organizations focused on youth, health and education.  In addition to being a co-founder, Sarah serves as the CEO of Beyond Type 1.

SAM TALBOT

Sam was diagnosed with Type 1 at the age of 12. A star in the culinary world, he has turned his love for food into an innovative career, opening several restaurants and participating in season 2 of Top Chef, where he was named “Fan Favorite.” He serves as a role model to adults and children alike by applying his “all-natural” style of cooking to every recipe.

Programs & Grantees

With a focus on education, advocacy, and the path to a cure, Beyond Type 1 has developed a broad ranging portfolio of grantees and programs aimed at improving the lives of people impacted by T1D. 100% of every dollar raised goes back to the Type 1 community, because our Founders + Founding Friends pay all operational and fundraising expenses.

Donate here and help fund Beyond Type 1’s global programs and grantee initiatives.

About Beyond Type 1 Grants


Beyond Type 1 issues grants to the most promising efforts and programs working to educate, advocate and cure Type 1. In fall of 2015, we accepted an initial round of grant applications and began issuing those grants in December of 2015.

We review grant and partnership proposals on a rolling basis. If you are working on something, and think that Beyond Type 1 would be a good partner, send us an email and tell us a bit about you, your organization, and the work that you're doing!

If you have any questions, contact Thom Scher.

Native Programs


In addition to issuing grants to outside organizations that are doing remarkable work, we also have our own set of programs. The website in English as well as Spanish is a wonderful resource for people impacted by Type 1 diabetes. Our content looks at both mental and physical care for those impacted by Type 1 and provides inspirational stories from those who have been there. For those newly diagnosed, our First 30 Days materials provide what is essential to know in those early days, and our Type1Day1 is an uplifting short film showing how no one with T1D is alone. Whether your newly diagnosed or have been living with Type 1 for many years, our programs aim to provide both community support as well as educate globally.


Snail Mail Club – Program


Our Snail Mail Club connects T1Ds all over the world as pen pals. Currently in 50 different countries with nearly 4,000 participants aging from 1 to 80 years old, the program fosters a global community of support for those living with Type 1. With Percy as its mascot, an insulin pump toting snail, the program encourages both children and adults to share their stories. The simple exchange of letters and experiences creates lasting friendships that help ease the burden of T1D management.

The Beyond Type 1 App – Program


Together, we’re creating the largest collection of practical ideas, stories and resources for not only living, but thriving with Type 1. We're stronger together with over 12,000 members from more than 100 different countries in the Beyond Type 1 app. People can share stories, read accounts from the community, ask questions, participate in polls, troubleshoot and be a part of a collective that offers both inspiration and support. Some of the main topics we cover are burnout, parenting, stress management, being newly diagnosed, sex, drugs & rock 'n roll.

DKA Awareness Campaign


When people in the United States are diagnosed with Type 1 diabetes, approximately 40% of them are in DKA, a dangerous and sometimes deadly consequence of diabetes. Beyond Type 1 is leading the charge to change that. Our DKA Awareness Campaign started with getting T1D warning signs posters and materials into 2,500 pediatric offices of Pennsylvania. That number is now over 15,000 in the states of Texas, New Jersey, Massachusetts, Ohio and Delaware. With the help of the American Academy of Pediatrics (AAP) and parent volunteers, we plan to reach every pediatric office in the US. Spreading awareness of Type 1 symptoms can facilitate early diagnosis and save lives. The US is just the starting point for a global DKA campaign; preparing for that, we've already translated our warning signs posters into 15 different languages.

 

 

Education – Programs


Education is the key to spreading awareness and changing current misconceptions as to what Type 1 is and how it is managed. Whether your child with Type 1 wants to talk to his or her classroom or entire school, we have printed materials and a power point presentation that explains what Type 1 is, how it's treated and even which celebrities have it. We have just launched a #LivingBeyond session for Type 1 diabetes camps as well that encourages youth to embrace their diagnosis and live a healthy life with a positive outlook.

The Human Trial


The Human Trial – the documentary film being made by Lisa Hepner and Guy Mossman from Vox Pop Films follows the stem cell research and first human trial being done by biotech pioneer Viacyte, based out of San Diego, CA. Talking with the scientists, entrepreneurs and patients behind the project, Hepner and Mossman explore what it takes to get funding and FDA approval for clinical research and medical advancement for what appears to be a Type 1 diabetes cure.

Hear what Lisa has to say about the project in her interview "The Human Trial and What it Means for a Cure"

DRI – The Diabetes Research Institute Foundation


DRI – (The Diabetes Research Institute Foundation) is solely focused on a biological solution for diabetes through research and clinical trials. Recently, they are the first to have successfully transplanted healthy islet cells on the surface of the omentum.

ConnecT1D


ConnecT1D – ConnecT1D is founded on the basic principal that people with Type 1 Diabetes manage their disease better when they have strong connections and support from others in the T1D community.  The nonprofit supports native programs, social networking, educational meetings and community events.

Nightscout


Nightscout – is about diabetes data “in the Cloud” storage that’s then accessible to parents with Type 1 children. The story: when the technology didn’t exist, parents hacked into Dexcom’s CGM and found a way to export that data on portable devices for extended monitoring. Talk about taking action.

More about Nighscout in interview with software engineer James Wedding: "Nightscout — the Technology that Changed the World We Know"

Marjorie’s Fund


Marjorie’s Fund – Their mission is to empower Type 1 adolescents and adults in resource-poor areas by providing education, additional resources and research for understudied populations. Daily, they are increasing survival rates in the most disadvantaged populations of our world.

Get a glimpse in this interview with founder Dr. Jason Baker: A Death Sentence — Changing the Outlook of Type 1 in Developing Nations.

Tidepool


Tidepool – is building a secure and comprehensive platform for diabetes data; these technophiles are making diabetes management seamless. Whatever app you’re using, you’ll be able to link it to an online system (blip) that tracks BGL data. Currently, they are developing an additional application that examines the impact of food and exercise.

Beyond Type 1 talks with founder and CEO Howard Look in "Tidepool — A Comprehensive Platform for Diabetes Management"

T1International


T1International – Working on a global scale, this organization is dedicated to securing insulin and diabetes supplies for those who can’t afford it. Due to pervasive ignorance around Type 1 and the high cost of adequate medical care, many go without, suffering dire consequences. This group is all about educating and assisting organizations that are on the ground and working directly with the people who need the help most.

Read more: "T1International and Their Global T1D Mission," an interview with founder Elizabeth Rowley.

ROI – Riding on Insulin


RidingOnInsulin – is all about empowerment and community, offering action sport camps (such as skiing and snowboarding) to kids and teens with Type 1. Spanning three countries, their organization motivates youth to be active and positive while connecting with the larger Type 1 community.

ViaCyte


ViaCyte – is the leader in regenerative medicine, researching pancreatic beta cell replacement therapy. After being implanted, the precursor cells mature into cells that secrete insulin. The end goal: total independence from insulin and better, sustained control of blood glucose levels.

To read the press release, visit here.

Social Media

FACEBOOK

We have the largest Facebook following on Facebook for Type 1 diabetes, where people are a part of the global T1D community. Read and share stories and resources; find out what is happening in the Type 1 space daily.

INSTAGRAM

By establishing a supportive community via powerful social media people are connected on a global scale in a new way. Our Instagram campaign “Living Beyond,” showcases the age, range and variance of those living their best life with T1D, and our Beyond Type 1 Daily will keep you updated on all things Bt1.

Submit to our Instagram Wall today!

TWITTER

If Twitter is more your thing, then contribute to the fast-paced convos on this platform where you can find stories, resources, current news, memes and that inspiring one-liner that will keep you tweeting.

PINTEREST

If you’re looking for inspiration in art, quotes and culinary dabbling, then start pinning on Pinterest. Be a part of what’s happening at Beyond Type 1 in terms of diabadass expression.

YOUTUBE

Videos are worth a thousand pictures — literally. See what Beyond Type 1 is talking about on YouTube in terms of advocacy, education and humor. Meet our council and global ambassadors who are doing incredible work across the globe; find out more about what Beyond Type 1 is all about.

SNAPCHAT

We’re also on Snapchat! Every day a different member in the Beyond Type 1 community posts, showcasing cool and exciting stuff happening in every part of the world. Start snapping today and add to our story!