Life with Type 1 Stories

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Caring for the Carers


We need to make sure our diabetes support crew don’t burn out too, suggests Ruby McGill, Diabetes NZ Director of Youth.READ MORE

The Night My Son Nearly Died for a Sprite


I told him that giving himself insulin would make him go “low.” He wanted to go low now, of course, in order to attain that precious Sprite that sat in the fridge awaiting him. I didn’t ever tell him that insulin was as dangerous as it is life saving. I never thought I had to.READ MORE

A Life-Saving Decision – Part 2


Read Part 2 of Braca's diagnosis in Thailand and how the family learned to care for him on the outside. READ MORE

What Saved Me After this Diabetes Error


“What’s the okay range again?” he looked up and asked. I started explaining, but stopped short as a found the number 311 on the screen.READ MORE

My Advice for Parents of a Newly Diagnosed Type 1


You can’t worry about the future because, “tomorrow will take care of itself.” Take it day by day, learn everything you can, ask questions, make mistakes and remember to laugh.READ MORE

Get Moving – #FlossingForType1


We know working together is better than working alone. We can win in the end. Amy and Navi need your help #FlossingForType1 to fundraise for a cure!READ MORE

My Thyroid Story


The day I got my thyroid taken out was anything but ideal, well … in some ways. My thyroid was successfully removed, but everything around that was not quite as smooth.READ MORE

School with Type 1: The Parent + Teacher Journey


Right before Mason turned 4 years old, he was diagnosed with Type 1 diabetes. So, when kindergarten rolled around, there were a million different scenarios to anticipate and prepare for months prior to the first day of school. Scary thoughts flooded my mind ... READ MORE

Michelle Berman Talks Life-saving DKA Campaign


When I first learned of children, teens and adults tragically losing their lives due to undiagnosed/missed diagnosed Type 1 diabetes, I was in disbelief. I was devastated to learn this was happening to many families, year after year.READ MORE

5 Tips for Families Living with T1D Teens


Adolescence represents a stage of multiple physical, behavioral and emotional changes, and living with Type 1 diabetes represents a need to make multiple adjustments in treatment.READ MORE

The Intersection


When I flew down to Rowland, North Carolina, in May of 2017 to interview a family about how they lost their 16-month-old baby to Type 1 diabetes, I didn’t know what I would find.READ MORE

Because of Lucy


Occasionally, the grief grabs hold of me.  From time to time, the resentment rears its head.  But, on most days, I stand amazed by a child who lives a full-color life despite the dark cloud of this disease.READ MORE

If You’re Going to Offend Me, At Least Make Me Laugh


If you ask me, though, the real disgrace is not just one jackass making light of an already stigmatizing condition. It’s that anyone would do it while trying to pass off a stale joke as some kind of achievement.READ MORE

Button Error – What You Must Know about Flying with a MiniMed 600 Series


Suddenly, my insulin pump Minimed 640 G had an alert displayed: "Stuck Button"READ MORE

A Mother’s Cautionary Tale


About two weeks before he died, I noticed a fruity odor on his breath when I was saying goodnight to him. I asked him if he had a juice box since he had just brushed his teeth and he said no. I didn’t think anything of it.READ MORE

The Plot Twist, A Dad’s Story


We started pumping her with more and more sugary drinks, not knowing we were slowly poisoning her. Her condition worsened, of course, so we went back to the doctor two days later. READ MORE

Real Athletes Poop Their Pants


Do athletes really poop their pants? Cat Carter talks about the terrifying incident during her half marathon.READ MORE

BeYOUtiful Bath Bombs Help Fund Type 1 Diabetes Cure


At just 10 years old Hannah is proving that she can do all that she sets her mind to do, and nothing, not even T1D, can stop her. READ MORE

Diabetics on the Margin: Celebrating Diversity Within the Diabetes Community


The purpose of this project, Diabetics on the Margin: Celebrating Diversity Within the Diabetes Community, is to elevate the narratives of diabetics of color. I wanted to bring awareness to our existence, as young black and brown women, living boldly with this disease (in our case, Type 1 diabetes).READ MORE

Get Out There – The Must-know Exercise Tips


So whether you are just getting started or are looking to increase the intensity of your workouts, here is the helpful advice our panel had to share!READ MORE

A T1D Easter Basket


Reimagining an Easter Basket full of treats for a kiddo with Type 1 diabetes - no sugary snacks included. READ MORE

Happy Diaversary, Mom


There is nothing cool about us both having to live with this disease, but the fact that we are not alone in it is something I don’t take for granted.READ MORE

Stuart Bookatz: The Humanitarian Inspiration We All Need


After a chance encounter with a neighborhood family that has two T1D children, Stuart decided to use his upcoming cross-country bike ride as an opportunity to educate others about a disease that he himself is just learning about.READ MORE

First-time Triathlon Training with Type One Run


Cassidy Robinson is taking on the Wildflower Experience with a little help from the T1D crew. READ MORE

What Type of Diabetes Supplies Organizer Are You?


From drawers to closet spaces, we found some of the most creative answers as to how people managing Type 1 diabetes organize the tools that help them do just that.READ MORE

3 Diabetes Fitness Myths You Shouldn’t Believe


I want to talk about diabetes myths because I hate seeing some of these myths discourage people living with diabetes from exercising, eating well and living full and healthy lives.READ MORE

DYF Camp Changed My T1D Kiddo’s Life


After years of being the 'only one's' we were suddenly surrounded by this huge community of people who had all chosen to come together to learn and support each other. READ MORE

Winter and Type 1 Diabetes


Type 1 diabetes shouldn't prevent you from enjoying the snow, the ice and the beauty of winter. Hear advice on diabetes management from Carla Cox, PhD, RD, CDE, who is an avid fan of winter sports and wonderlands.READ MORE

Jerry the Bear Comes Home


Before bedtime I was in Ava’s room folding laundry, when she walked in and said, “I think diabetes is kind of hard. I get why you and papa work so hard on Henry’s blood sugar.”READ MORE

The Invisible Family Member


How we wish that "divorce" was an option. How we wish that this "forced adoption" could be called off. Heck, how we wish we could sleep again for a change! But this 'family member’ is here to stay.READ MORE

Riding with T1D


When I was first learning to ride and just walking and trotting for thirty-minute periods, it wasn’t too difficult to manage my blood sugars. As the skills I was learning became more difficult and more intense, so did managing my blood sugars.READ MORE

Diabetes Distress: The Emotional Cost of Living with Chronic Illness


If you live with Type 1 diabetes or any other form of chronic illness you understand exactly what the word "distress" feels like. At times it can be so overwhelming and the lingering aftermath so great, it can seem like there is no way out.READ MORE

From Grief to Greater Than


After Hayden’s Type 1 diabetes diagnosis, the first few months were tough on all of us, but I particularly was pulled into a blackhole of anxiety, worry and depression.READ MORE

11 Nosy Questions with Your New Favorite T1D Couple


Bike Beyond's Amanda Oberski and Matt Swain fell in love on the road. This is their story. READ MORE

Between Now and a Cure


On the evening of September 10, 2009, the streets of Kampala were ablaze with political protests, and a "boda-boda" was weaving through the jam-packed traffic. My father was hauling me, his comatose son, to find urgent medical care. READ MORE

Childhood, Interrupted — Reconciling a Carefree Life with a Demanding Disease


From the minute you, or someone you love, receives diagnosis of a chronic disease, your view of the world shifts. It doesn’t take time to sink in. It starts now. The clock is reset. Your life is redefined.READ MORE

The Things People Say


I hear the same things from other parents over and over again, after this diagnosis. Please, if you have been the asker of these questions, don't feel bad. I know exactly where the question came from and I harbor no ill will.READ MORE

Celebrities Supporting the T1D Community


Raising awareness about Type 1 diabetes helps improve education about the chronic illness, dispel misinformation and aid in cure research funding. Check out who makes Beyond Type 1's list for Celebrities who Support the T1D Community.READ MORE

Cold and Diabetes – Antifreeze in the Blood?


Now that winter’s here, it’s time to explore the mysterious relationship between diabetes and cold weather. Most of the people I know who have Type 1, also have strong opinions about what cold does or doesn’t do to one’s sugars.READ MORE

Temporary Tattoos and Device Help Children Take Insulin Injections


Thomy is an insulin kit that helps children inject insulin. Both fun and innovative, it includes temporary tattoos with planetary designs to mark used injection sites. READ MORE

Self-care is Never Selfish for Parents of Kids with Diabetes


Being a parent can be one of the most rewarding – and most tiring jobs a person does. Add a child with Type 1 diabetes to the mix, and all bets are off! READ MORE

What is Diabetes Distress?


According to Dr. Lawrence Fisher, Research Director at the Behavioral Diabetes Institute (BDI), Diabetes Distress or “DD” refers to all the fears and worries that people with diabetes experience on a daily basis. Fear of complications or the fear of hypoglycemia are examples of the types of concerns that may cause DD.READ MORE

Pre-Marathon Nightmares to Amazing Race Day BGs


My family was a little surprised when I ran the idea of running the TCS New York City Marathon by them last February. Perhaps because I was not a runner, they didn’t think that anything would come out of my hasty idea. READ MORE

It Isn’t Permanent


Her mother suggested that one day Corinne may want to consider getting a tattoo in lieu of wearing a medical alert bracelet. Corinne responded that she was afraid it would hurt and before her mother could reassure her that the pain would be temporary Corinne said, “Won’t it hurt to have the tattoo removed, when there is a cure?”READ MORE

Going the Distance to Raise Awareness


No man is an island, especially when Type 1 diabetes is involved. We made history in our region with our team and we showed the world that you can’t break our spirit!READ MORE

5 Lessons from Running the 5 Boroughs with Beyond Type Run


I had the unbelievable opportunity to make my marathon debut at the largest marathon in the world, one of the six Marathon Majors, and I did it all while marking my 20th year living with Type 1 diabetes.READ MORE

I’m Not Slowing Down


The desire to make a difference came to me as soon as I was diagnosed. I promised myself that I would be stronger than diabetes. Running a half marathon has emerged as a personal challenge that would help me raise awareness and fight diabetes. READ MORE

What the World Showed our Team Bike Beyond


This summer Bike Beyond showed the world we could do anything as Type 1 diabetics. Now they need your help and your voice.READ MORE

To Love, Honor and Cherish


Our promise to “love, honor, and cherish” was tested just two months after we officially started our lives together. Diabetes hits the person and everyone they love. Some relationships deal with it from day one. Others, like my spouse and I, are ambushed midstream.READ MORE

Navigating Wellness Trends with Type 1 Diabetes


If something sounds too good to be true, it probably is. Cultivating a truly “well” body takes time and effort, much like tending to a garden. READ MORE

My Relationship to Food has Forever Changed


It seems like in an instant I went from a sugar-cereal-eating, corner-piece-of-the-cake-loving child to a cautious carb-counting 20-something machine.READ MORE

What Makes Me a Runner


The thing about running is that everyone laces up their shoes with their own fingers, and mine just happen to be callused. Running is about more than the discomfort. Running is about more than the miles. Running is about more than me. READ MORE

Running My Race


Having Type 1 diabetes has taught me is that it is important to keep running, and keep going even if things get tough. I am inspired by my Beyond Type Run teammates, who like me, continue to run their race fiercely and passionately without letting Type 1 slow them down.READ MORE

5 Reasons Why I Love to Hate Running


Have I completely lost my mind? Sometimes I think so as I’m forcing my fatigued body to push through those double-digit runs over the weekend when I’m supposed to be resting from a taxing workweek. Part of this insanity is what pushes me toward that finish line on November 5th.READ MORE

Journey to Marathon


Running is for you and you only. It is whatever you want to make it — whether you run to compete, push yourself, inspire others, deal with stress, be healthy, finish, or to prove something to yourself.READ MORE

How I Learned to Love my Body


For the first time in my life, I was okay listening to my body. I listened to it when it was in pain, or when it told me it needed a day off. READ MORE

Beyond Type Run: Catching up with Chewey


When I first started, I had no goal in mind. I’m not just running for Type 1, I’m running for all the types. Now I'm just gonna keep going — I don't have an end number of races in mind for this year. READ MORE

T1D Cardiologist Balances Life with Marathon Running


Running a marathon would usually be an exceptional experience to write about however in this case I am one of a team of athletes with Type 1 diabetes training for the 2017 TCS New York City Marathon.READ MORE

Seeking Comfort in a Birthday Diaversary


As people get older, they tend to dread their birthdays. My birthday is a reminder of the day my life changed forever.READ MORE

A Diagnosis Timeline: Why T1D Awareness Matters


At no time had I ever been informed about Type 1 diabetes. It was not on my radar. In my opinion, this is a huge failing and it must be addressed. Why are pediatricians not warning us of the signs and symptoms? Why is it not in the red book?READ MORE

Insurance Changes and Harsh Realities


A few weeks ago, my insurance was solid, my supplies were world class, and my entire paycheck wasn’t needed to have access to such. Now, I sit in a totally different reality.READ MORE

How Type 1 Diabetes prepared me for Marathon Training


How Type 1 Diabetes prepared me for marathon training: From gross glucose tablets to finding your tribe, life with diabetes gave me a running start in the mental training for 26.2 miles.  READ MORE

Dear Little Purple Pancreas


I found myself in my educator’s office for pump training for you, my Minimed 530G. I dreaded the moment of connecting to you.READ MORE

The Power of Community


When we face a diabetes diagnosis, one of the best ways to cope with it is by recognizing that the diabetes online community (DOC) is eager and willing to be there for you.READ MORE

More Than Just a Monologue


Mindy is self-publishing a memoir about growing up with chronic illness and the importance of mental health. This is an excerpt. READ MORE

Wandering Alone


Reflecting on the power of taking on solo expeditions while managing Type 1 diabetes. Conquering fear is always the first step in going at it alone — for anybody, not just us insulin-dependents.READ MORE

You know you have Type 1 when …


Have Type 1 diabetes? Then you'll get it. Here are 21 ways you know you have Type 1.READ MORE

Why I’m Running


I am running the TCS New York City marathon because it’s time to educate. It’s time to spread awareness of not only what having T1D means, but also what it doesn’t mean.READ MORE

I Nearly Died from DKA


While my dad was shoveling my grandma's driveway, back at home, my mom had lifted me over a baby gate in the kitchen and watched my eyes roll back into my head. READ MORE

10 Things That Can Spike Your Blood Sugar


Even when you keep a close eye on your BGL, the unexpected can affect it. Here is our list of 10 things that you might not have realized affect your blood sugar.READ MORE

6 Tips for Surviving the Wedding Season


So by no means am I a pro, but I think I’ve picked up on the jist of what the whole “wedding guest as a Type 1 diabetic” lifestyle is alllll about.READ MORE

A Runner’s Guide to T1D


Twenty years after her diagnosis, Stephanie Kahn is readying to run a half marathon and a full marathon in the same year. While her training is readying her body, it's her mind she feels shifting as she finally comes to terms with talking openly about T1D.READ MORE

34 Years Later: Reflecting on Faith and Support


In today's technology age, I have a support group larger than I ever imagined, filled with people with Type 1 from all over the world. READ MORE

5 Tips for Running with Type 1 Diabetes


Running with diabetes hasn't always been pretty. It's been trial and error every single day. Within 10 days of my diagnosis, I had all the technology available to assist with diabetes management. READ MORE

Strength Is Accepting Help


Kaylin Hunter used to think being strong meant refusing a life vest and fighting the T1D current and the anxiety of managing a chronic disease entirely on her own, but she now defines strength as recognizing the need for help and accepting it.READ MORE

Diving with Diabetes in the Philippines


A surreal SCUBA dive in the Philippines goes awry, landing a Type 1 diabetic in the hospital on a very remote island.READ MORE

8 Reasons T1D Camp is Better as an Adult


Who says camp is only for kids? Find out about “diabetes camp for adults” and why we know you will love the camp experience even more as a grown-up!READ MORE

It’s No Longer Just a Needle Game


After her body started resisting injected insulin, Ginger Gault knew she needed a change. After switching to Afrezza, an inhaled insulin, her life has taken an entirely new direction. READ MORE

How to Answer “Why Me?”


Cole Eller was diagnosed with T1D when he was one. His mother spent four years waiting for the day he would ask why. Together they’re exploring the answer to that question by educating others. READ MORE

Agustín and the Uninvited Guest


Uruguay - On April 27, 2015, we received an uninvited guest who has now become a friend and lives with us at home.READ MORE

Some Things Are Meant to Be


Heather spent her first 12 years with T1D searching for meaning in the chaos of Type 1. When her little sister was diagnosed last year, she found that meaning.READ MORE

I Freaking LOVE My Diabetes!


Having Type 1 diabetes has forced me to find the silver linings, not only in the management of my disease, but across all aspects of my life. READ MORE

Advice for Life, Five Years at a Time


There was no way our little girl would ever feel different or excluded because of a disease she did not choose.READ MORE

Ariana, My Brave Princess


As a mother, I felt something was just not right but I truly never thought it was something this wrong. I started reading, and it all indicated “diabetes,” something inconceivable in my mind.READ MORE

Flying with Dia-Anxiety


The author shares her realization of the anxiety she overcomes on each flight with diabetes.READ MORE

A Double Success Story in T1D Pregnancy


Over a year of IVF treatment had the best possible outcome for Katie Solovey: twin boys! READ MORE

Growing up with T1D


T1D presents different challenges at different stages of life. Here's advice for managing T1D as one comes into young adulthood.READ MORE

Their Journey Became Our Journey


After traveling to Brooklyn to see the Bike Beyond riders off, Samantha Merwin and her son, Logan, were so swept up in the journey that they altered their summer plans to meet the riders at the finish line. READ MORE

How to Be a Supportive Partner: Advice from a Type 1’s Wife


A Type 1 Wife shares her journey toward supporting her partner in the best way possible. READ MORE

Type 1 Poetry: I Used To Sleep


Andrea Mourad creates original art and poetry that reflect the day-to-day demands of Type 1 diabetes.READ MORE

Poked & Pinned: An Artist’s Journey


The Poked & Pinned photo series mimics ritual, transforming rarely-seen acts into ones that must be seen.READ MORE

Living My Dream as a College Athlete


I have been playing baseball for sixteen years now. I started playing way before being diagnosed with Type one diabetes, and have continued to play baseball still today as a Type one diabetic on an insulin pump.READ MORE

Backpacking 101: Tips from the Experts at Connected in Motion


At Connected in Motion, we love connecting people around adventure. We love the intense sense of community created by a group of people exploring the edge of their comfort zones and leaping into the unknown.READ MORE

Out of Insulin in Turkey


Trying to explain what T1D is to people in the USA is often challenging, but I never imagined how hard it would be to explain what T1D is to a doctor who was not familiar with it, in a language I was not fluent in.READ MORE

My Drug Overdose and Shocking Diagnosis


My friend was panicked as she thought I drank too much, but there were two problems working against me that night: 1) I was having a drug overdose and 2) I was an undiagnosed Type 1 diabetic. READ MORE

Finding the Calm Beyond


A new mom’s journey with autoimmune diseases forces her to find new levels of calm, resiliency and strength.READ MORE

Dealing with a School Lockdown and Type 1


Josette Soto has worked hard to ensure her daughter is safe and safely protected while at school. Here's her take and her tips around parental back-to-school preparation. READ MORE

12 (More) Things Only a T1D Parent Understands


There are somethings that only a T1D parent understands. Beyond Type 1 knows exactly what you mean ... again.READ MORE

Allow Life – Beyond the Diagnosis


I recall watching my daughter struggle for air in her half-conscious state. Her breathing was slow and hoarse, and she was no longer responding to outside stimulation. READ MORE

Diagnosed with Type 1 at Age 57


Laying there on the stretcher, I told the doctor that I knew I was bitten by a mosquito and probably had the Chikungunya virus. He looked at me and said my sugar level was 750 and I was in DKA. READ MORE