Life with Type 1 Stories


T1D in the Wild: Holiday Party Hacks

For most, the idea of holiday festivities is always fun and exciting. For those of us with T1D, however, there often needs to be a bit of planning involved before we can party it up with Santa.READ MORE

Samantha & Ryan Talk Getting Married with T1D

Weddings are already incredibly stressful, and getting married when not one but both people involved have Type 1 diabetes can make things that much more difficult, but also that much more rewarding.READ MORE

A Day in the Life of T1D

Bonnie O'Neill spent 60 hours receiving text messages from a colleague with Type 1 diabetes so that she could have a small glimpse into the everyday mental aspects of living with T1D.READ MORE

T1D in the Wild: Device Etiquette

There are many things to consider here – how we react to those who are uninformed about our various gadgets, and how we approach other people with Type 1 out in the world.READ MORE

Superstar Mentality: An Interview with Dempsey Foxson

Dempsey is a competitive gymnast who was diagnosed with T1D in 2012 and continues to push her limits as an athlete, dancer and diabetes advocate.READ MORE

How to Host Your Own Bike Beyond Screening

Matt Swain hosted a Bike Beyond screening at his childhood diabetes clinic in Toronto and shares his tips for creating a successful event.READ MORE

Diagnosis Day and Living Beyond: Stephanie’s Story

It was just a normal Saturday in the Northwood Blyth household in Melbourne on the 10th of November 2002. But the next day our lives would change forever. READ MORE

Paddy McCartin: T1D in the AFL

Paddy McCartin is a professional Australian Rules Football player who has lived with Type 1 diabetes for 14 years and advocates fiercely for the disease.READ MORE

9 Dumb Diabetes Questions

It is easy to be ignorant about a complicated disease like Type 1 diabetes, but by being a bit conscientious, we can better educate ourselves by asking the right questions.READ MORE

Recapping The 2018 Abbott Dash to the Finish Line 5K

A number of people with T1D opted to run the 5K as their way to participate in marathon weekend in NYC, and had a blast doing so!READ MORE

Caitlin Kinnunen: Type 1 on Broadway

Caitlin Kinnunen opens up about The Prom, how she manages her diabetes on stage, the importance of having a strong support system, and her aspirations for the future. READ MORE

Overcoming FOH: Fear of Hypoglycemia

While hypoglycemia is always a possibility and is a reality those with T1D must live with, there are ways to overcome living in constant fear.READ MORE

Traversing the World with T1D

Nadit knew he needed to see the world, but when he was diagnosed with Type 1 diabetes, challenges he had never faced before became his every day life. Conquering the diabetes learning curve and leaning on his support system allowed Nadrit to achieve the impossible.READ MORE

Recapping the Beyond Type Run NYC Marathon Brunch

The Beyond Type Run 2018 Marathon Brunch took place in New York City last Saturday in preparation for Sunday’s marathon. The team gathered at the Ainsworth FIDI to get to know each other, enjoy some delicious food and listen to inspiring speeches.READ MORE

Eat As Much Pizza As You Want

This National Diabetes Awareness Month, we’re proud to partner with Real Good Foods to help bring awareness to those affected by T1D. READ MORE

Runner Spotlight: Gary and Katrina Pilkington

Health and fitness are a priority in Gary and Katrina's lives so that they can set an example for their daughter and inspire others to do the same!READ MORE

13 Questions with Beyond Type Run Marathoner Brian Thedy

Meet Brian – first year medical student, peanut butter enthusiast, T1D since 2017, and Dexcom G6 user.READ MORE

Runner Spotlight: Patrick Votruba

Beyond Type Run Marathoner Patrick Votruba talks about his diagnosis, experience running in ultra marathons, and how he has been training for the 2018 NYC Marathon.READ MORE

13 Questions with Beyond Type Run Marathoner Mary Lucas

Meet Mary – "My 20th diaversary is in November, and I wanted to do something special for that. Running the NYC Marathon and raising money for Beyond Type 1 is the perfect way to celebrate and honor my 20 years living with T1D!READ MORE

13 Questions with Beyond Type Run Marathoner Apoorva Gomber

Meet Apoorva — Doctor, Diabetes advocator, Passionate to connect T1D’s and a coffee lover.READ MORE

13 Questions with Beyond Type Run Captain Dave Holmes

Meet Dave – Beyond Type Run 2018 team captain, writer, TV + Podcast host, Podder and Type One Run member.READ MORE

13 Questions with Beyond Type Run Marathoner Marie Diaz

Meet Marie – T1D Since 2000, running in her first Marathon and looking forward to exploring New York!READ MORE

How much does it cost to produce insulin?

Study sets prices for the future of biosimilars.READ MORE

13 Questions with Beyond Type Run Marathoner Emily Trantum

Meet Emily – "Running has always been a part of my life and over the years it's taught so many lessons that have carried over into all aspects of my life. After being diagnosed with Type 1 at age 30, something that felt so natural all of these years, suddenly was the hardest thing for me to do."READ MORE

13 Questions with Beyond Type Run Marathoner Olivia Polischeck

Meet Olivia — Student-Athlete at Amherst College, Dodgers lover, country music fan, Omnipod and Dexcom G6 user.READ MORE

13 Questions with Beyond Type Run Marathoner Romain Ballet

Meet Romain – Ironman, postdoctoral scholar at Stanford University + Immune cells lover, professional day dreamer, and a beyond-his-own-limits explorer.READ MORE

13 Questions with Beyond Type Run Marathoner Lauren Dagg

Meet Lauren – Primary school teacher in London, big fan of coffee, often sarcastic, slightly competitive, and loves a run!READ MORE

Runner Spotlight: Gabriela Sierra

I decided to join the Beyond Type 1 Team for two main reasons: To have a new goal that would allow me to reconnect with my training, my perseverance and my exercise ... the second reason is to educate and keep dispelling myths and stigmas, leading by example. I couldn't believe it when I was chosen and I realized that I was the only Mexican runner on the team.READ MORE

Representation in Media – How The Stories We Hear Become the Stories We Tell Ourselves

In the US, there are over 1.25 million people with Type 1 diabetes. In 2017, there was only one regular or recurring character onscreen with Type 1.READ MORE

Runner Spotlight: Léonor Marchand

Léonor Marchand talks with Beyond Type 1 about her running inspiration, how she's preparing for the NYC Marathon, and advice for people living with Type 1 diabetes.READ MORE

13 Questions with Beyond Type Run Marathoner Bridget Woznica

Meet Bridget – Writer, photographer, and adventurer. "I was so inspired by the 2017 team and knew I wanted to be a part of that amazing energy!"READ MORE

Mark Andrews: A Tight End with Type 1

The Baltimore Ravens tight end Mark Andrews has been managing his Type 1 diabetes since before he started playing football. Beyond Type 1 spoke with Mark about his pre-game rituals, how technology like the Dexcom G6 helps him stay on top of Type 1 on long Sunday afternoons.READ MORE

13 Questions with Beyond Type Run Marathoner Scott Feighner

Meet Scott –T1D of 53 years, energetic father, grandfather and favorite funcle! "I wanted to let other T1D's know you can achieve anything you desire. I'm a 67-year-old T1D!"READ MORE

13 Questions with Beyond Type Run Marathoner Kirsten Myers

Meet Kirsten – mountain enthusiast, public health nerd and frequent traveler. She works with the awesome team at mySugr, calls the Pacific Northwest home and can be frequently found in a book.  READ MORE

13 Questions with Beyond Type Run Marathoner Torrey McKnight

Meet Torrey – Pediatric Oncology Nurse, car karaoke queen, coffee addict and travel hacker. "I remember following the inaugural Beyond Type Run team last year (2017) on Instagram and feeling like I had to be part of it the next time if I could. "READ MORE

13 Questions with Beyond Type Run Marathoner Megan Hanson

Meet Megan Hanson – Mom to four boys, Podder, philanthropist and first-time marathoner. She wants to show her boys that they can accomplish anything they put their mind to.READ MORE

Type 1 Diabetes in the Philippines

I live in the Philippines where every expensive test strip & every unit of insulin is paid out of our pocket... Our basic need for survival is at stake.READ MORE

I Run with Type One

It’s about who wants it more, you or the girl next to you, and who is willing to work for it and embrace pain. Of course, when you're done, the fact that you accomplished all you did with T1D makes it badass.READ MORE

How to Support Your T1D Teen in Running

My advice to anyone dealing with a runner with Type 1 diabetes comes down to this: know what you’re working with and know who you’re working with.READ MORE

My Sister and I have Type 1

Living with type 1 diabetes has created an unbreakable family bond - my sister has it too! It has changed our lives for sure. READ MORE

The Best Birthday Gift I Ever Got

I don’t curse my fate. But for the accident of my birth in 1957, and not in 1857, I have therapies available to cope with the Type 1 diabetes.READ MORE

A Diagnosis and the Music that Followed

That album was an outlet that helped me process the way I was feeling at my diagnosis. Because of Type 1 diabetes, I had a story to tell. READ MORE

Not Your Average Summer Camp

Not only did camp give me the tools and education to live a healthy, strong life with T1D, but it gave me the people who helped me stay strong; the people who have always had my back and lifted me up when I needed it. Diabetes camp gave me my family, and I am forever grateful.READ MORE

My Fearless Approach to Type 1

Peering almost 500 feet down from my position perched on a narrow railing, intense wind threatening to blow me over the edge, I watch the river flowing far below. I’m not feeling hopeless or terrified, but exhilarated beyond belief.READ MORE

Caring for the Carers

We need to make sure our diabetes support crew don’t burn out too, suggests Ruby McGill, Diabetes NZ Director of Youth.READ MORE

The Night My Son Nearly Died for a Sprite

I told him that giving himself insulin would make him go “low.” He wanted to go low now, of course, in order to attain that precious Sprite that sat in the fridge awaiting him. I didn’t ever tell him that insulin was as dangerous as it is life saving. I never thought I had to.READ MORE

A Life-Saving Decision – Part 2

Read Part 2 of Braca's diagnosis in Thailand and how the family learned to care for him on the outside. READ MORE

What Saved Me After this Diabetes Error

“What’s the okay range again?” he looked up and asked. I started explaining, but stopped short as a found the number 311 on the screen.READ MORE

My Advice for Parents of a Newly Diagnosed Type 1

You can’t worry about the future because, “tomorrow will take care of itself.” Take it day by day, learn everything you can, ask questions, make mistakes and remember to laugh.READ MORE

Get Moving – #FlossingForType1

We know working together is better than working alone. We can win in the end. Amy and Navi need your help #FlossingForType1 to fundraise for a cure!READ MORE

My Thyroid Story

The day I got my thyroid taken out was anything but ideal, well … in some ways. My thyroid was successfully removed, but everything around that was not quite as smooth.READ MORE

School with Type 1: The Parent + Teacher Journey

Right before Mason turned 4 years old, he was diagnosed with Type 1 diabetes. So, when kindergarten rolled around, there were a million different scenarios to anticipate and prepare for months prior to the first day of school. Scary thoughts flooded my mind ... READ MORE

Michelle Berman Talks Life-saving DKA Campaign

When I first learned of children, teens and adults tragically losing their lives due to undiagnosed/missed diagnosed Type 1 diabetes, I was in disbelief. I was devastated to learn this was happening to many families, year after year.READ MORE

5 Tips for Families Living with T1D Teens

Adolescence represents a stage of multiple physical, behavioral and emotional changes, and living with Type 1 diabetes represents a need to make multiple adjustments in treatment.READ MORE

The Intersection

When I flew down to Rowland, North Carolina, in May of 2017 to interview a family about how they lost their 16-month-old baby to Type 1 diabetes, I didn’t know what I would find.READ MORE

Because of Lucy

Occasionally, the grief grabs hold of me.  From time to time, the resentment rears its head.  But, on most days, I stand amazed by a child who lives a full-color life despite the dark cloud of this disease.READ MORE

If You’re Going to Offend Me, At Least Make Me Laugh

If you ask me, though, the real disgrace is not just one jackass making light of an already stigmatizing condition. It’s that anyone would do it while trying to pass off a stale joke as some kind of achievement.READ MORE

Button Error – What You Must Know about Flying with a MiniMed 600 Series

Suddenly, my insulin pump Minimed 640 G had an alert displayed: "Stuck Button"READ MORE

A Mother’s Cautionary Tale

About two weeks before he died, I noticed a fruity odor on his breath when I was saying goodnight to him. I asked him if he had a juice box since he had just brushed his teeth and he said no. I didn’t think anything of it.READ MORE

The Plot Twist, A Dad’s Story

We started pumping her with more and more sugary drinks, not knowing we were slowly poisoning her. Her condition worsened, of course, so we went back to the doctor two days later. READ MORE

Real Athletes Poop Their Pants

Do athletes really poop their pants? Cat Carter talks about the terrifying incident during her half marathon.READ MORE

BeYOUtiful Bath Bombs Help Fund Type 1 Diabetes Cure

At just 10 years old Hannah is proving that she can do all that she sets her mind to do, and nothing, not even T1D, can stop her. READ MORE

Diabetics on the Margin: Celebrating Diversity Within the Diabetes Community

The purpose of this project, Diabetics on the Margin: Celebrating Diversity Within the Diabetes Community, is to elevate the narratives of diabetics of color. I wanted to bring awareness to our existence, as young black and brown women, living boldly with this disease (in our case, Type 1 diabetes).READ MORE

Get Out There – The Must-know Exercise Tips

So whether you are just getting started or are looking to increase the intensity of your workouts, here is the helpful advice our panel had to share!READ MORE

A T1D Easter Basket

Reimagining an Easter Basket full of treats for a kiddo with Type 1 diabetes - no sugary snacks included. READ MORE

Happy Diaversary, Mom

There is nothing cool about us both having to live with this disease, but the fact that we are not alone in it is something I don’t take for granted.READ MORE

Stuart Bookatz: The Humanitarian Inspiration We All Need

After a chance encounter with a neighborhood family that has two T1D children, Stuart decided to use his upcoming cross-country bike ride as an opportunity to educate others about a disease that he himself is just learning about.READ MORE

First-time Triathlon Training with Type One Run

Cassidy Robinson is taking on the Wildflower Experience with a little help from the T1D crew. READ MORE

What Type of Diabetes Supplies Organizer Are You?

From drawers to closet spaces, we found some of the most creative answers as to how people managing Type 1 diabetes organize the tools that help them do just that.READ MORE

3 Diabetes Fitness Myths You Shouldn’t Believe

I want to talk about diabetes myths because I hate seeing some of these myths discourage people living with diabetes from exercising, eating well and living full and healthy lives.READ MORE

DYF Camp Changed My T1D Kiddo’s Life

After years of being the 'only one's' we were suddenly surrounded by this huge community of people who had all chosen to come together to learn and support each other. READ MORE

Winter and Type 1 Diabetes

Type 1 diabetes shouldn't prevent you from enjoying the snow, the ice and the beauty of winter. Hear advice on diabetes management from Carla Cox, PhD, RD, CDE, who is an avid fan of winter sports and wonderlands.READ MORE

Jerry the Bear Comes Home

Before bedtime I was in Ava’s room folding laundry, when she walked in and said, “I think diabetes is kind of hard. I get why you and papa work so hard on Henry’s blood sugar.”READ MORE

The Invisible Family Member

How we wish that "divorce" was an option. How we wish that this "forced adoption" could be called off. Heck, how we wish we could sleep again for a change! But this 'family member’ is here to stay.READ MORE

Riding with T1D

When I was first learning to ride and just walking and trotting for thirty-minute periods, it wasn’t too difficult to manage my blood sugars. As the skills I was learning became more difficult and more intense, so did managing my blood sugars.READ MORE

Diabetes Distress: The Emotional Cost of Living with Chronic Illness

If you live with Type 1 diabetes or any other form of chronic illness you understand exactly what the word "distress" feels like. At times it can be so overwhelming and the lingering aftermath so great, it can seem like there is no way out.READ MORE

My Brother Died from DKA

We prayed with every fiber of our beings for a miracle. The test offered no miracle, and now we were surrounding his bed interlocking hands, with his pastor reciting final prayers.READ MORE

From Grief to Greater Than

After Hayden’s Type 1 diabetes diagnosis, the first few months were tough on all of us, but I particularly was pulled into a blackhole of anxiety, worry and depression.READ MORE

11 Nosy Questions with Your New Favorite T1D Couple

Bike Beyond's Amanda Oberski and Matt Swain fell in love on the road. This is their story. READ MORE

Between Now and a Cure

On the evening of September 10, 2009, the streets of Kampala were ablaze with political protests, and a "boda-boda" was weaving through the jam-packed traffic. My father was hauling me, his comatose son, to find urgent medical care. READ MORE

Childhood, Interrupted — Reconciling a Carefree Life with a Demanding Disease

From the minute you, or someone you love, receives diagnosis of a chronic disease, your view of the world shifts. It doesn’t take time to sink in. It starts now. The clock is reset. Your life is redefined.READ MORE

The Things People Say

I hear the same things from other parents over and over again, after this diagnosis. Please, if you have been the asker of these questions, don't feel bad. I know exactly where the question came from and I harbor no ill will.READ MORE

Celebrities Supporting the T1D Community

Raising awareness about Type 1 diabetes helps improve education about the chronic illness, dispel misinformation and aid in cure research funding. Check out who makes Beyond Type 1's list for Celebrities who Support the T1D Community.READ MORE

Cold and Diabetes – Antifreeze in the Blood?

Now that winter’s here, it’s time to explore the mysterious relationship between diabetes and cold weather. Most of the people I know who have Type 1, also have strong opinions about what cold does or doesn’t do to one’s sugars.READ MORE

Temporary Tattoos and Device Help Children Take Insulin Injections

Thomy is an insulin kit that helps children inject insulin. Both fun and innovative, it includes temporary tattoos with planetary designs to mark used injection sites. READ MORE

Self-care is Never Selfish for Parents of Kids with Diabetes

Being a parent can be one of the most rewarding – and most tiring jobs a person does. Add a child with Type 1 diabetes to the mix, and all bets are off! READ MORE

What is Diabetes Distress?

According to Dr. Lawrence Fisher, Research Director at the Behavioral Diabetes Institute (BDI), Diabetes Distress or “DD” refers to all the fears and worries that people with diabetes experience on a daily basis. Fear of complications or the fear of hypoglycemia are examples of the types of concerns that may cause DD.READ MORE

Pre-Marathon Nightmares to Amazing Race Day BGs

My family was a little surprised when I ran the idea of running the TCS New York City Marathon by them last February. Perhaps because I was not a runner, they didn’t think that anything would come out of my hasty idea. READ MORE

It Isn’t Permanent

Her mother suggested that one day Corinne may want to consider getting a tattoo in lieu of wearing a medical alert bracelet. Corinne responded that she was afraid it would hurt and before her mother could reassure her that the pain would be temporary Corinne said, “Won’t it hurt to have the tattoo removed, when there is a cure?”READ MORE

Going the Distance to Raise Awareness

No man is an island, especially when Type 1 diabetes is involved. We made history in our region with our team and we showed the world that you can’t break our spirit!READ MORE

5 Lessons from Running the 5 Boroughs with Beyond Type Run

I had the unbelievable opportunity to make my marathon debut at the largest marathon in the world, one of the six Marathon Majors, and I did it all while marking my 20th year living with Type 1 diabetes.READ MORE

I’m Not Slowing Down

The desire to make a difference came to me as soon as I was diagnosed. I promised myself that I would be stronger than diabetes. Running a half marathon has emerged as a personal challenge that would help me raise awareness and fight diabetes. READ MORE

What the World Showed our Team Bike Beyond

This summer Bike Beyond showed the world we could do anything as Type 1 diabetics. Now they need your help and your voice.READ MORE

To Love, Honor and Cherish

Our promise to “love, honor, and cherish” was tested just two months after we officially started our lives together. Diabetes hits the person and everyone they love. Some relationships deal with it from day one. Others, like my spouse and I, are ambushed midstream.READ MORE

Navigating Wellness Trends with Type 1 Diabetes

If something sounds too good to be true, it probably is. Cultivating a truly “well” body takes time and effort, much like tending to a garden. READ MORE

Banting — The Man, the Myth, the Legend

Banting arrived at his eureka moment in 1922, when he injected dog insulin into a human patient. The procedure worked, and suddenly Type 1 diabetes was no longer a death sentence.READ MORE

My Relationship to Food has Forever Changed

It seems like in an instant I went from a sugar-cereal-eating, corner-piece-of-the-cake-loving child to a cautious carb-counting 20-something machine.READ MORE

What Makes Me a Runner

The thing about running is that everyone laces up their shoes with their own fingers, and mine just happen to be callused. Running is about more than the discomfort. Running is about more than the miles. Running is about more than me. READ MORE

Running My Race

Having Type 1 diabetes has taught me is that it is important to keep running, and keep going even if things get tough. I am inspired by my Beyond Type Run teammates, who like me, continue to run their race fiercely and passionately without letting Type 1 slow them down.READ MORE

5 Reasons Why I Love to Hate Running

Have I completely lost my mind? Sometimes I think so as I’m forcing my fatigued body to push through those double-digit runs over the weekend when I’m supposed to be resting from a taxing workweek. Part of this insanity is what pushes me toward that finish line on November 5th.READ MORE