Jesse Was Here—A Program of Beyond Type 1


 2023-07-31

About Jesse Was Here

Jesse Was Here—a program of Beyond Type 1—provides resources, support and tools for those navigating life after a type 1 diabetes (T1D) death.

Here you will find:

  • Resources for the early days, weeks and months—from planning a service or creating a memorial fund to thoughtfully removing your loved one from social media or explaining T1D to others.
  • Stories from those who have experienced loss—some after living with T1D, others due to a missed diagnosis.
  • Connection with others—fellow parents, siblings, spouses or loved ones—in a private Facebook group for parents and siblings.
  • Opportunities to celebrate your loved one through legacy projects, raise awareness about T1D or support others navigating loss.
  • Additional content as we build this vital resource.
  • For Spanish, visit our Spanish page.

Inspiration

Jesse Was Here was inspired by Michelle Bauer Alswager’s experience after the sudden death of her 13-year-old son, Jesse, from type 1 diabetes. Grieving the loss of her child, and the potential loss of the diabetes community, she created an online community to support parents who had also lost their children to type 1 diabetes.

By connecting with others who shared her experience, she realized many of those seeking support and opportunities to honor their loved ones struggle with unexpected funeral expenses, ongoing medical bills and sometimes even the funds for a headstone.

Through her efforts, she discovered many others—not just parents of young children—were looking for peer support, practical information, coping tools and financial assistance. Working together, Michelle and the team at Beyond Type 1 are creating a very special program to serve this unique and deserving community.

For parents

Please consider joining the private support group for parents on Facebook.

Losing Will Hauver


His very good A1Cs, his maturity and independence with diabetes management, his success in college, all of this lulled us into complacency. Hindsight while grieving is a painful and horrible exercise....MORE

A Mother’s Cautionary Tale


About two weeks before he died, I noticed a fruity odor on his breath when I was saying goodnight to him. I asked him if he had a juice box since he had just brushed his teeth and he said no. I didn...MORE

Four Years Later: Reflections on Losing Will


As I approach the four year anniversary of Will’s death, I find myself reflecting on what my life looks like now compared to before.MORE

From Coping to Healing (And Everything in Between) — An Interview with Michelle Bauer


Michelle Bauer sits down with Beyond Type 1 to discuss her newest book, Jesse Was Here (More Lasagna, Please): Feeding the Soul of a Grieving Mother. MORE

Rare Until It Happens to You: The Kycie Terry Story


The Terry family spoke to Beyond Type 1 about their late daughter Kycie and the importance of advocating for the warning signs of Type 1 diabetes.MORE

Losing Mikey To Diabetic Ketoacidosis + Undiagnosed T1D


Marie Cohen shares her story about grief after losing her 25 year-old son Michael to DKA and undiagnosed type 1 diabetes.MORE

12 Honest Answers about What Lies Ahead


Eight years after losing her son, Michelle shares her advice for navigating the loss of a child with type 1 diabetes.MORE

The Importance of Finding a Community For Grief


Grieving the loss of a loved one, especially a child, to type 1 diabetes can be difficult. You don’t have to do it alone.MORE

How To Support Someone Grieving: Don’t Say These


Supporting a friend or relative through grief can be challenging. Choosing your words wisely is always a good idea. Here's what not to say.MORE

When You Lose A Child, Grief Changes You Forever


Kathie Natzke talks about life after losing her son, what grief looked like a year later and how she’ll never be the same person again. MORE

The Ebb + Flow of Grief During Holidays


Michelle reflects on how the pain of losing her son months and even years later still aches during holidays.MORE

Managing Social Media After A Loved One Passes


After losing a loved one, their memory on social media may be too painful. Here is some info on how to handle their accounts.MORE

Getting Counseling Help For Grief


There’s no wrong or right way to navigate grief after losing a child to type 1 diabetes. Counseling can help so you never feel alone.MORE

Getting Financial Support After A Loss


Losing a loved one can leave piles of medical bills and funeral costs. Setting up a fundraising page can help ease that burden.MORE

The Friends + Family Guide to Helping Parents Heal After Loss


Not sure how to help a grieving friend? Michelle shares things you can do to help someone you love through grief and healing.MORE

Resources

Please consider joining the private support group for siblings on Facebook.

“Jesse Was Here (More Lasagna, Please): Feeding the Soul of a Grieving Mother” Book Review


In a new book, Michelle Bauer recounts her son Jesse’s life with T1D, interactions following his death, and practical advice for those experiencing grief.MORE

The Importance of Finding a Community For Grief


Grieving the loss of a loved one, especially a child, to type 1 diabetes can be difficult. You don’t have to do it alone.MORE

How To Support Someone Grieving: Don’t Say These


Supporting a friend or relative through grief can be challenging. Choosing your words wisely is always a good idea. Here's what not to say.MORE

Getting Counseling Help For Grief


There’s no wrong or right way to navigate grief after losing a child to type 1 diabetes. Counseling can help so you never feel alone.MORE

Getting Financial Support After A Loss


Losing a loved one can leave piles of medical bills and funeral costs. Setting up a fundraising page can help ease that burden.MORE

The Friends + Family Guide to Helping Parents Heal After Loss


Not sure how to help a grieving friend? Michelle shares things you can do to help someone you love through grief and healing.MORE

Stories

Losing Will Hauver


His very good A1Cs, his maturity and independence with diabetes management, his success in college, all of this lulled us into complacency. Hindsight while grieving is a painful and horrible exercise....MORE

My Brother Died from DKA


Knowing there are many misconceptions about T1D, a woman set out to improve public education after her brother died from a DKA complication.MORE

A Mother’s Cautionary Tale


About two weeks before he died, I noticed a fruity odor on his breath when I was saying goodnight to him. I asked him if he had a juice box since he had just brushed his teeth and he said no. I didn...MORE

Four Years Later: Reflections on Losing Will


As I approach the four year anniversary of Will’s death, I find myself reflecting on what my life looks like now compared to before.MORE

From Coping to Healing (And Everything in Between) — An Interview with Michelle Bauer


Michelle Bauer sits down with Beyond Type 1 to discuss her newest book, Jesse Was Here (More Lasagna, Please): Feeding the Soul of a Grieving Mother. MORE

Survivor’s Guilt: Losing My Brother to DKA


I should've told my sister-in-law over and over again how important it was to pay attention to his health and get him treatment immediately if he was sick. Death from DKA is preventable, and I kn...MORE

Rare Until It Happens to You: The Kycie Terry Story


The Terry family spoke to Beyond Type 1 about their late daughter Kycie and the importance of advocating for the warning signs of Type 1 diabetes.MORE

Losing Mikey To Diabetic Ketoacidosis + Undiagnosed T1D


Marie Cohen shares her story about grief after losing her 25 year-old son Michael to DKA and undiagnosed type 1 diabetes.MORE

The Ebb + Flow of Grief During Holidays


Michelle reflects on how the pain of losing her son months and even years later still aches during holidays.MORE

Gaining Purpose After Losing My Brother Travis


Losing a sibling with diabetes is hard, but can also create beautiful unexpected outcomes. Hear how Travis’s memory is now saving lives. MORE

Jesse Was Here is a program under the BT1 x JDRF Alliance.

WRITTEN BY Beyond Type 1 Editorial Team, POSTED 07/31/23, UPDATED 12/04/23

This piece was authored collaboratively by the Beyond Type 1 Editorial Team.